>be type 1 diabetic
>take most basic care of myself and my diet
>struggle sometimes with uncontrollable glucose, but buckle down instead of blaming “muh autoimmune disorder”
>glucose is 90+% in range
>A1C is 6.0
>have better A1C than the majority of Americans
How do people with functioning pancreases really get this bad?
Tips for anyone ISTizen with T1D by the way:
1.) Get a tiny cardio machine to put in your room. I have a compact step climber that’s literally half the size of a hamper, and whenever my glucose starts to get high I preemptively climb for like 20 minutes. Works like a charm. Also helps when insulin doesn’t seem to be as effective for any given reason.
2.) Sugar alcohols are good (in moderation), but try to limit to erythiol, monkfruit, and stevia. Others seem to spike you. Sucralose > maltitol and others if necessary. Don’t go too overboard though — natural sugars from berries will always be best. I only ever really use these to add to iced coffee.
3.) If you have a pump, turn of basal rates 20-30 minutes before exercise and turn it back on around the same time before you finish. It takes a bit of practice, but helps keep me from crashing.
Hope this helps!!!
Hey dude. I’ve been type 1 for 20 years. Good job controlling your shit. I’ve worked in healthcare for a long time and it’s depressing as fuck watching diabetics circle the drain. It’s mostly type 2’s because they don’t know shit about nutrition in the first place. To them healthy food means switching from regular soda to diet and ordering the small fry. I have watched people go from pre diabetic to missing limbs and they are confused the whole time. All these fucks think is that they need to take their metformin and take an extra walk. Keep your shit in check. My A1.c is always in the low 6’s and I’m still starting to get diabetic retinopathy. Control is how we make it past 66.
Seriously good luck man, and shit sucks. Even being strict with my T1D I still ended up getting Reynauds Phenomenon. WAGMI though, even if life can be BS sometimes.
Thanks dude. The goal is to die with all ten of my toes.
Diabeetus scares me. I'm trying my best to avoid it but I think I'm starting to get T2D symptoms of it or it could be something else. I eat low carb on off days but I take a lot of whey. Mixing it with my greek yoghurt and stuff like that.
Does whey really spike insulin a lot as some people say?
It’s never spiked my glucose, but people vary. Fibers spike me sometimes for example, but other times I’m unaffected. I’m guessing it has to do with which are soluble and which are insoluble.
In any case, if you’re gonna become diabetic, it won’t be because of the whey (at least, from how I’ve seen it interact with my glucose).
I'm Skinny Fat btw with approx 20% bf. I think if I lose fat it could remove some of the symptoms or is it too late?
I’m no expert on T2D. I have Type 1 Diabetes, which is caused by your immune system attacking your pancreas as a child. It’s incurable and chronic.
That being said, the majority of T2D cases are caused by some combination of sedentary lifestyle and poor diet according to my endocrinologist. If you have either/both of these and an elevated A1C, treating these factors will lead to a lowering of A1C.
Note that T2D doesn’t always equal fat though. Asia has had an exponential increase in Type 2 Diabetics over the past few decades even though their population is only a few percent obese. Carbohydrates without fiber or fats can cause insulin resistance, which is the cause of T2D.
How can you build a nice body and stay low carb?
My BG was 100 last I checked and my a1c was 5.1
I’m super nervous because t2 runs in my family.
How am I supposed to be eating???
Btw I’m 26% BF and working on getting that down to the teens but dieting is incredibly hard with a desk job with super long hours and a preg wife
eat enough protein and lift. low fat or high fat it shouldnt matter much
You can go low low carb if you want, but I’ve maintained my glucose well as a type 1 diabetic just by exercising before/after meals and eating a moderate amount of complex carbs. I mostly eat vegetables, berries, and starches like potatoes for carbs, and I try to go on a walk or step-climb for a minimum 10 minutes right before or after a meal.
The latter was really a game-changer for me. For the life of me, no matter how much insulin I gave myself prior to a meal, I would spike and crash half an hour after eating. I now give myself like 70% the insulin I used to and do some low intensity shit, and the insulin absorbs like magic.
I dunno how a functioning pancreas with non-synthetic insulin would differ, but I’d assume the principle is the same.
Diabetes doesn't really have symptoms until you're extremely diabetic and you're like pissing multiple times during the night. Insulin resistance can have symptoms. If you have health care you can get your A1C and fasting glucose and fasting insulin tested and see where you're at in terms of that sort of thing
I was thinking about taking a test but I'm scared of the results ngl.
>A1C is 6.0
>have better A1C than the majority of Americans
>better A1C than the majority of Americans
Are you serious?
>scared of the results
I'm scared of developing the beetus and going fucking blind.
Get tested and stop eating shit
T2DM is caused by fat, especially omega-6 polyunsaturated fats (linoleic acid, in seed oils). T2DM has been cured by diets consisting entirely of white rice, fruit juice, fruit, sugar. Eating carbs improves glucose tolerance, raw honey improves insulin resistance.
Why is it that some studies show the opposite? High fat low carb diets reversing t2
Weight loss by any method as well as exercise improves insulin resistance.
So I need to control my calories and protein and fill in the blanks with carbs and fat, lift often, walk often.
Depends on the fat. If you keep eating massive amounts PUFAs, you're not going to get better. Most ppl doing high fat keto/carnivore are usually consuming more SFAs and MFAs than PUFAs.
The pancreas does not process fat. Diabetes 2 is caused by the pancreas being overloaded by high glucose. High fat diets are great for diabetics. I’m type 1 and my A1.c has never been above 7. Where are you getting this fat causes diabetes idea?
Why are PUFAs specifically bad? Aren't EPA/DHA the only essential fats?
They are easily peroxidized, which makes them break down into toxic/carcinogenic compounds. On top of that PUFAs literally suffocate your muscle cells, stopping insulin from doing it's job of letting in glucose and other nutrients.
Calling them essential is retarded. The amount you need is minuscule and our bodies can make them when needed, otherwise anyone growing up on a low fat diet would have a severely underdeveloped brain.
Diabetes is fake
I wish. What I wouldn’t give to be a T2D Andy that could at least cope about maybe potentially putting it into remission with diet and exercise.
Type two is caused by fat buildup in the liver blocking insulin receptors and straining the pancreas. DNP cures this and cures diabetes. I saved my dad’s life with DNP over a decade ago when his fatty liver started processing out iron and red blood cells. After losing 100lbs on DNP, his liver was spotless and diabetes was gone… he later gained all the weight again and became diabetic again but decades of liver fat haven’t come back so quickly.
dirty moron penis?
is 90+% in range
>>A1C is 6.0
more than doubled risk of blindness and diabetic complications compared to hba1c of 5%
bros im 19, been t1d for over 17 years and have been stuck with medtronic due to insurance reasons i think
only within the last ~2 years have i been on their cgm and its been a lifechanger in both good and bad ways (good = better bg's, lowered a1c (slowly descending from the mid-7's into the 6's, goal atm is 6.5), etc., bad = losing sleep. holy hell. oh and some other things too but not nearly as bad)
however recently ive been given the option of the dexcom g6 (i think, whichever one is the second most recent dexcom) and the omnipod
i have several questions:
1) should i? my endo thinks its a godsend. should i do it now? my endo told me the g7 doesnt pair with omnipod yet but ive heard the g7 is way better than the g6
2) how easy would the transition be from medtronic pump + cgm to omnipod + dexcom? anything i would have to get used to? any personal stories? the thing that worries me is that, while i wouldnt have a pump to get caught on things, i would now have a sizeable "tumor" attached to me, and if that rips off then uhh... lmao (luckily i havent had my infusion site rip off but like once, but the clip on the pump has broken on multiple occasions. fuck that thing)
3) are the needles smaller than medtronics? im fairly thin and while i have started working out im not big by any means, and i dont really have much fat anywhere beside maybe my lower back and butt. i cannot imagine putting medtronic's cgm on my arm because that needle scares me
4) are both the omnipod and dexcom easy to remove? medtronic's infusion site is fairly standard but FUCK the cgm and its adhesive from hell
5) unrelated, but some nights my bg crashes after i brush my teeth, and the last time i bolused was like 4 or more hours ago. it can be hanging around like 140 or something then descend to 70. is this just a result of active insulin or something else? if its the latter how can i mitigate it? if i eat something small before i go to bed and dont bolus it just rises to 200 or more
I’m on the OmniPod and Freestyle Libre 3. I can see why she’d want you on the Dexcom; it’s supposed to be closed loop with the most current OmniPod model.
I personally haven’t bothered because I’m able to regulate pretty well myself, but if you’ve been struggling to keep your glucose under wraps then I totally recommend. The OmniPod alone is a lifesaver due to the lack of tubing. I used to get caught on doorknobs with the Tandem, which I think functions similarly to the Medtronic, but I have far more mobility now.
I’d definitely switch to OmniPod, but whether it pursue closed loop with the Dexcom is up to you. I keep Libre because it’s wayyyy cheaper with my insurance.
i see, my bg isnt out of wack but i would like to get my a1c as low as possible
so whats the difference between that and what i have now? with medtronics cgm, the pump will automatically give more insulin if my bg is rising or high and stop if its trending down or low, but it will kick me out of that system if im high/low for too long, where it then goes on a fixed basal rate until i check my bg again (which is another point of frustration with the cgm), and i still have to give insulin for food and stuff. i also have to calibrate every 12 hours which is a pain in the ass if im thrown off schedule.
does a closed loop forgo all that?
my endo said that some of her patients go for long spans of time without using a glucometer on the omnipod and dexcom. it just sounds too good to be true
I haven’t used either so I’m not entirely sure what the difference between closed loop technologies are. If I had to guess, the OmniPod may check and correct in smaller increments more often to achieve more precise glucose control. If you were to switch, I do so mostly based on the lack of tubing. That was the selling point for me.
Also, to your second point, I go weeks at a time without using a glucometer because my libre is sufficiently accurate without calibration. There isn’t even an option to do so in the app. The only time I ever have to is when my glucose is going up or down REALLY REALLY fast, wherein the libre loses some of its accuracy and I have to go by manual bg checks.
>I go weeks at a time without using a glucometer because my libre is sufficiently accurate without calibration
fuck medtronic then, it can be way off and only be a couple of hours after calibration
thanks for your input
No problem bro. Happy to help 🙂
I’ve been on omnipod for about a year. I’m pretty muscular and about 16% bodyfat. My number one complaint is I lost a couple site locations switching from medtronic to omnipod. I can’t use my quads anymore because there’s not enough fat. Use glutes almost exclusively and go to stomach once every 2-3 weeks to just give them a break. I compete in powerlifting though and that means no belt when I’ve got the pod on my stomach for 3 days which is a pain in the ass. I used to just rotate between glutes and quads with medtronic.
The other big complaint I have it’s way more expensive month to month, but you don’t have the up front cost.
I actually went to injections briefly when my medtronic shit the bed out of warranty and I was stuck waiting on insurance to approve a new pump/omnipod. I liked not having a pump all the time, but my dr wanted me on 5 injections a day total, and I was having a hard time to doing that. I tried Afreza the inhaleable insulin though and it was freaking great, but insurance refuses to cover it. If they would I’d switch to it.
huh, didnt know you'd lose suitable spots for sites when using the omnipod. is the upper arm not suitable?
also, how does the omnipod interact with the clothes you're wearing? medtronic's sites are fairly flat so they arent really noticeable (aside from the pump lol) and i dont have issues with it snagging on anything or whatever
also i havent heard about the inhalable insulin, only the baqsimi or whatever its called for glucagon. wonder if my insurance will cover it
The reason I lost the quad was that I have too much muscle and not enough fat that there, but there is the size factor. The pod is significantly larger than your standard pump site. So I’m sure plenty of people can use the quad, but it burns like hell for me every time I bolus and seems to not take effect as fast, I’m assuming because it’s effectively intramuscular instead of subcutaneous so it’s not absorbing as quick.
I’ve never tried to use it on the upper arm, but I can only imagine the same problem as the quad would happen since the muscle to fat ratio is probably even higher there. I also think you’d bang the hell out of it on door frames and stuff if you aren’t careful. Granted I’m pretty broad shouldered and banged the freestyle cgm on door frames and stuff all the time too, so I may have a skewed view of that.
As far as being noticeable under clothing you won’t notice it on your glutes or stomach if you aren’t wearing something super tight. It’s way easier to conceal without having to worry about tubing.
The inhaleable insulin Afrezza is really cool. It works like 3x faster than any fast acting injectable, which is also a plus on it. The down side of it is they only come in doses of 4 units, 8 units, and 12 units so you can’t get super dialed in with it. Those units correspond on 3/4 ratio to humalog with me though so it’s like having to only bolus in 3 unit increments. That also means you need to have humalog or fiasp or something on hand in case you need to do a correction dose or something in increments lower than that.
mm i see. i very likely could use it on my thigh but i would have to get used to a site there since ive never done them there
thanks for sharing. im not 100% sold on it right now but i will probably switch to it eventually anyway
One of the good things about it is you aren’t bought in on it when you try it. You can get one months worth and try it and if you hate it get a different pump. In fact I think omnipod gives you a month’s supply as a trial if you request it.
oh awesome, didnt know that
my biggest issue was whether or not i could work with it but if i can just switch back freely then thats a big fear lifted
Yeah, they send you a free pdm or the little tablet thing that controls it, or at least they did for me through my insurance, I assume it’s the same with most all insurance and maybe even just with every customer in general. So the only money you put it into it are the individual pods. I will say see if you can get your dr to prescribe a high enough daily does of insulin to require 1 pod every 2 days instead of every 3, even if you don’t use that much. Reason being if you have a pod occlude or rip off or something you’re fucked if they’re only giving you 10 a month, because 1 pod can only be used for 80 hours max. If you get prescribed 15 a month though you’ll have plenty of spares. Each pod holds 200 units of insulin, so if you can get a script for 80 or 100 units a day it’ll work out that you get 15 a month. I only use like 50-60 units daily, but got a script for 100 for this very reason.
thanks for the heads up
2 days is very short though lol, im over here using an infusion site for four days if not longer
Yeah, that’s why I warned you. They will automatically expire at 72 hours, and will then give you an 8 hour grace period after which they turn off. I’ve never seen anyway around that either. I used to go 4 days on average before changing sites, and was prescribed to change every 3. If you’re prescribed to change the same length of time as you actually change it’s easy to run out of supplies after one bad site.
>They will automatically expire at 72 hours, and will then give you an 8 hour grace period after which they turn off
wow thats kinda scummy, not that medtronic’s much better though lol
Diabetes more like diapenises haha
Bumping the only interesting thread on IST right now
Love to see anons actually helping each other. Good luck and keep up the hard work.
love from Kazakhstan
Love you too fren. This thread has motivated me to keep extra good track of my bg today. For my T1D, T2D, and pre-diabetic friends, WAGMI
I've had t1 for 5 years now and I don't understand what im looking at in this image. It makes me nervous that i'm not doing enough. I check my blood with glucose test strips in a machine called freesyle optium neo and I get single digit readings. I know I want my blood in the range of ~6.5 before a meal and ~8.5 2 hours after a meal. I have a good unerstanding of carbohydrate exchanges and my meals are very well balanced. I know I was supposed to keep going to the hospital and meet up with endocronologists but I was too anxious and just never went. Are you guys doing anything I'm not doing?
No no Anon, you’re good. I know depending on the country there are different measurement systems for glucose, just like Fahrenheit and Celclus. You can find converters online, but I don’t know the conversion rate from memory.
Sounds like you are measuring blood ketones my dude. Blood glucose is different.
americans use mg/dl while in my yuropoor country we use mmol/l. so their sweet spot range is 75-190ish while ours is 4-10ish.
Also thanks to this thread I figured to attempt connecting my medronic pump to my phone again. Their minimed app is notoriously shit with working on newer android versions and what do you know it actually connected for once. So thanks for that OP. The app itself is pretty good. If only it worked more than not. Really getting the itch not to update my phone for a while again.
Unless fasting or eating little to no carbs I can't ever get nice flat lines like that.
A1c in mid to high 5s but daily graph looks like this.
Don't know if the ups and downs are worse then slightly higher a1c
Do you pre bolus? I usually take jnsulin like 10 or 15 mine before actually eating so the insulin is acting already before carbs hit. Might help with the spikes and keep it more even
How do you avoid getting lows when staying on the lower end of the range?
Its much easier to stay at a ~150 level but once I'm around 100 I'm easily dropping into a low
Is it true americans have to pay for needles? I read that there are americans that dont change their needles for the entire use of their pens, reading that made me physically cringe, surely americans aren't tearing their stomachs apart reusing needles for days for weeks at a time.
A lot. My prescription for my CGM alone (checks my sugar every few minutes to monitor changes — see graphs in thread) is over $70 a month WITH bougie healthcare. That’s not counting the pump (what another Anon and I talked about earlier; gives you micro doses of insulin constantly instead of big shots a few times a day) and insulin of course. All expensive.
What can you do, I guess. No use whining into the void.
I use needles and a g7. Last two A1C‘s were 5.3 and 5.6.
I do intermittent fasting, basically eat once a day, been doing that for years. 25 years Typ 1. Can’t put on weight though. But I guess it’s better to be a skelly than losing my eyesight in the long run. Injecting insulin intervenously is a gamechanger, check it out anons.
You don't have insulin resistance. You have no idea what others experience. It's fundamentally not the same.
Bet the other T1s are doing better than me
Tips to other T1D patients here:
> Don't be afraid to experiment (as long as its not putting you in danger). Increase/decrease insulin doses in small increments every few weeks. Personally I found that splitting doses in half before and after meals and switching to slower bolus helped. For minimed users, look into square wave and dual wave in the manual. Look into glycemic index and glycemic load. I personally split high fat meals in +4 doses (pizza, burgers, etc.)
> Asses your condition when dosing bolus at every meal. Stressed today? Maybe increase the dose a bit. Moving apartments this week and thus more active than usual? Take that into account when dosing. You need to understand and be in touch with your body inside and out.
> This goes without saying on IST, but exercise is essential, but different people react to different kinds of exercise differently. Cardio usually drops BG levels, while high intensity exercise causes spikes (through adrenalin and whatnot), so take that into account when eating a few hours before/after working out (this is of course all individual, make sure to understand your body). Personally, for the first 6 weeks, weight training made me go hypo every time if I ate a few hours around it, since was so out of shape that my cardiovascular was strained the session. I now drink a cup of milk 30 mins before and take with it a specific dose that i know wont make me go hypo or hyper.
> Weight training is going to have a more long-term positive effect on your BG levels, since more muscle is more metabolically demanding to maintain (allowing you more freedom in what you eat), and increases insulin sensitivity. I personally found that training close to RPE 10 makes my blood sugar more stable for a few days afterwards. The only explanation i found online was that it drained glycogen stores which needed to later be replenished (don't quote me on this). Again try new things out (safely) and see if they have any benefit for you.
Your BG is a always has been a moving target. Keeping it in range is more of an art than I science.
Forgot to say, experiment with bolus timing. If you have unstable bloodsugar levels after meals, get a scale and measure every gram of carbs for a few months to make sure you arent under/overestimating on certain foods.
>Cardio usually drops BG levels, while high intensity exercise causes spikes (through adrenalin and whatnot)
Yeah can vouch for this. I tend to be super insulin resistant on my post workout meal but after that I usually take my dog for a walk and crash there and go almost hypo lmao. I have also considered that splitting bolus thing with fat+carb heavy foods. Solid advice overall and people struggling should put some of this into consideration when learning how their body works with t1 betus.
Right now my hba1c is 5.1. Going to try to minimize hypos a bit more. It would help if my cgm didn't bug out like this.
im 52mg/dL at 2 in the morning lol i hate this disease so much
hypo gains goblin ruining good nights sleep. sadly common. now just get it fixed and try to plan evening meal bit better tomorrow.
Lots of spinking up and down. But fixing morning Spike now with shorter long acting cause toujeou is too flat
Typical day. Now using a long acting with 8 hour half life (berlinsulin) along with Toujeou before sleep to cut down the morning spike.
OP reminding of the pre bolus is so important I got used to inject while eating. Big Problem is GF cooking and I have to gauge how much carbs it is.
>americans americans americans americans
threadly reminder that the average EU/UK citizen lives in an 850 square foot apartment
850. can you imagine that? they *raise families* in that
Does green tea help with blood glucose/ insulin ?
>How do people with functioning pancreases really get this bad?
Laziness and gluttony. Plus, they have the advantage they don't have to care (at least not for a few decades) whereas you do, if you don't want to die.
T1 as well, keep it up fren.