Lifting with rare health conditions

I have a question because this topic is really specific so i couldnt find much answers.

My girlfriends suffers from Syringomyelia. Small explanation of it:
>Syringomyelia is the development of a fluid-filled cyst (syrinx) within your spinal cord. Over time, the cyst can enlarge, damaging your spinal cord and causing pain, weakness and stiffness, among other symptoms. (Also pic related)

In her case it damages the nerves. But she is willing to start lifting because i firmly believe that lifting can help her overall condition and make her stronger. She is on opioids, every 12 hours she has to take them otherwise the suffering/pain is too strong.
What workout should she do? I was thinking about a 2 week workout plan or maybe 3 day workout plan. I should be really easy at beginning for her but the aim is to build muscles.
Does anyone else here suffer from Syringomyelia? Its a really rare disease and i doubt anyone here has it but i take any feedback. I just know that if she starts working out and starts building muscles she can better her state, not heal but better and make it easier. I just need to be really careful, especially with the back. Do you guys have any ideas what to do?

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  1. 1 year ago
    Anonymous

    obviously consult a doctor

    • 1 year ago
      Anonymous

      Normally we disregard doctors biased opiniones and shit, but that disease looks like something that shouldnt be messed with. Do what says

    • 1 year ago
      Anonymous

      Yes, i mean this is being done aswell.
      But i want to collect as many opinions and possibilities to create a good workout plan.
      Also, it doesnt maybe have to be weights. Calisthenics could be better.

      Why doesn't she just drain the cyst

      Syrinx cant be healed, it can heal on its own somehow sometimes if you are really lucky, you can drain it but it always fills up because that "hole" sport is always there.

      Normally we disregard doctors biased opiniones and shit, but that disease looks like something that shouldnt be messed with. Do what says

      >I strongly believe
      Please talk to an actual medical professional before you turn your GF into a vegetable because you unironically believe the things you read here to be true.

      I am telling her to talk to doctors and of course she does that.
      With the "i strongly believe" was meant she doesnt do any sports at all, so she doesnt build muscles. And that will just make her more miserable in the future. She will visit the docs and but i often have really negative experience with doctors.

      • 1 year ago
        Anonymous

        >But i want to collect as many opinions and possibilities
        The only opinions you should care about are from a medical professional you moron Black person. Lifting isn't going to get rid of pain so bad that she needs to take opiates

  2. 1 year ago
    Anonymous

    Why doesn't she just drain the cyst

  3. 1 year ago
    Anonymous

    Get her doing yoga

    • 1 year ago
      Anonymous

      unironically the best answer in here, after consulting a doc

  4. 1 year ago
    Anonymous

    >I strongly believe
    Please talk to an actual medical professional before you turn your GF into a vegetable because you unironically believe the things you read here to be true.

  5. 1 year ago
    Anonymous

    >my gf is a genetic failue
    Get a new one then.

    • 1 year ago
      Anonymous

      One of my characteristic is to always stay loyal to anything. So no.

      >But i want to collect as many opinions and possibilities
      The only opinions you should care about are from a medical professional you moron Black person. Lifting isn't going to get rid of pain so bad that she needs to take opiates

      As i said, a medical professional is ongoing but extra information wont hurt.

      would say through common sense don't do anything that would cause inflammation in there (would imagine it's hard to tell due to opiods), no rows or deadlifts. but tbh no one on fit is smart enough to be a doctor. just schedule something and ask them.

      Yea i thought the same, doint only workouts that dont work the back at all. I was generally wondering if IST has people with a similiar state of the body.

      • 1 year ago
        Anonymous

        >One of my characteristic is to always stay loyal to anything. So no.
        Ever heard of the sunken cost fallacy senpai?

        • 1 year ago
          Anonymous

          She is a human being and not some stock to cut lmao. And her personality is really sweet.
          If you get attached to someone you dont just leave. If your parents or siblings get terminally ill you also dont just abandon them.

          • 1 year ago
            Anonymous

            That would track for me only if she was your wife.
            Blood and family are different than gfs.

            • 1 year ago
              Anonymous

              Good gfs become wifes. And she is only sweet to me. It would be the most scummy thing to just abandon her because live is hard on her. But i kinda see the view, most people, which are not in the same situation would just say "leave" so you dont have that problem attached to you. But when you love someone and spend most time together. Its hard. You also wouldnt swap a dog if she has only one leg because is otherwise fully healthy and alive.

              • 1 year ago
                Anonymous

                Remember than you are going to have to deal with her problem for all of your life if you keep her, and that's a pretty serious one.
                You do you.

              • 1 year ago
                Anonymous

                I know, i am still a bit scared about it. But just abandoning her doesnt feel right. I love her and she never gave me any reason to distrust her or leave her. I was never unhappy with her.
                Thats why i want her to to into lifting or rather training the body in general. So she builds muscles and gets a bit more robust.
                I also dislike women in general, she is the only one. I would probably not get a gf after her anyway.

              • 1 year ago
                Anonymous

                I got to say, i don't think building muscle will help her.
                It's a nerve problem, even being huge would do nothing for her condition.

              • 1 year ago
                Anonymous

                Well she does no excersises at all so a bit more muscles wouldnt hurt. But you are probably right that the pain wont go away because of building muscle.

              • 1 year ago
                Anonymous

                OP I also strongly believe that working out on a regular basis is very healthy in many other aspects of life. Even if it's (almost) obviously not helping her cyst problem, it absolutely has the potential to give hore more energy and especially happiness in the long run. Some cardio on a regular basis, maybe some Sauna here and there will go a long way for the rest of her system and wellbeing.

                But to be honest I believe the greatest factor to achieving happiness or any other goal in life is to learn and live by discipline. Nothing but discipline will get you to where you want to be and a regular set-in-stone workout program (with the person 100% understanding that discipline is the key) will get you and your gf on your way to wherever you want to be.

              • 1 year ago
                Anonymous

                Yes, most importantly i have to teach to control her impulses and that she learns discipline in general. Thanks for the advice.

              • 1 year ago
                Anonymous

                Black person I have this same condition, ankyolising spondylitis, and vascular ehlers danlos syndrome. Good for you for sticking up for her, but I promise she wouldn’t do the same. I’ve made this mistake twice and been cheated on both times. You’re settling because you’re comfortable

              • 1 year ago
                Anonymous

                Well youre not married. God doesnt care if youre disloyal to her. Youre living in sin by sexing her and living together before marriage already anyways so youll reap what youre asking for either way. Maybe her condition is part of your punishment

                >t. Optimist

          • 1 year ago
            Anonymous

            One of my characteristic is to always stay loyal to anything. So no.
            [...]
            As i said, a medical professional is ongoing but extra information wont hurt.
            [...]
            Yea i thought the same, doint only workouts that dont work the back at all. I was generally wondering if IST has people with a similiar state of the body.

            based

            >my gf is a genetic failue
            Get a new one then.

            >One of my characteristic is to always stay loyal to anything. So no.
            Ever heard of the sunken cost fallacy senpai?

            That would track for me only if she was your wife.
            Blood and family are different than gfs.

            Black person

            • 1 year ago
              Anonymous

              Thanks for the Black person homosexual, keep your cripples lmao.

              • 1 year ago
                Anonymous

                Hitler and his eugenic homosexuals lost chud

  6. 1 year ago
    Anonymous

    would say through common sense don't do anything that would cause inflammation in there (would imagine it's hard to tell due to opiods), no rows or deadlifts. but tbh no one on fit is smart enough to be a doctor. just schedule something and ask them.

  7. 1 year ago
    Anonymous

    Is she vaxxed by chance?

  8. 1 year ago
    Anonymous

    she shouldnt lift, your a fricking moron if you think it will help her condition, she is likely to sustain severe problems if she aggrevates her condition, anything more than regular exercise and body weight movements is a bad idea.

    • 1 year ago
      Anonymous

      Yea i got that, i guess i was wrong on that part.
      But one anon here mentioned yoga. Yoga and aerobics would probably be a good way.
      She should do something, otherwise the body just degrades and thats it.

  9. 1 year ago
    Anonymous

    i'm a med student and don't know shit, but even with some risk involved you have to take into acount the price of being inactive (skiny fat physique, low aerobic capacity, higher risk of chronic disease etc..)

    from what I've read it seems like theres risk particularly with lifting heavy while bracing hard (especially if you're not used to it or use too much weight too soon)

    I image aerobic exercise (swimming, jogging) shouldn't be a problem at all, and some light bodybuilding using submaximal weights with higher rep ranges can be a good and safe start

    just remember to start slow, build adaptations and check on her symptoms

    last thing is that doctors are very risk averse, so even if the risk is very small, most doctors will just tell you to not lift at all, but they don't view the full picture with negative consequences of not owning/being comfortable with your body

    • 1 year ago
      Anonymous

      Thanks for the advice, i will copy that or rather the whole treahd to read it back up when we actually start this. Yea, we will start really slow and see how it progresses.

      Black person I have this same condition, ankyolising spondylitis, and vascular ehlers danlos syndrome. Good for you for sticking up for her, but I promise she wouldn’t do the same. I’ve made this mistake twice and been cheated on both times. You’re settling because you’re comfortable

      Im sorry to hear that. And also sorry that you got cheated on.
      The "she wouldnt do the same" thing is debateble, maybe she wouldnt maybe she would. We will not know. But right now she is loyal to me and very sweet and nice. Also even if she wouldnt do the same, thats on her account. My personality is just being loyal. Only when loyality is broken, i would stop. Loyality is the most important thing to me, be it to your principle, believes or people you have around. Thats why i still have the same friends i had back at the age of 12 years. Dont mistake loyality with being gullible. I would end the relationship in an instant if she cheated on me. Its complicated and you always can second guess or say "she wouldnt do X".
      But i take it as it is, she is loyal and loving me fully, why would i break up because of reasons like "you wouldnt be if the roles were reversed". It feels like self destructing thoughts.
      But on the other hand, if you have the same conditions, what workout do you do. Do you have any general advices? How long do you have this condition and how do you cope with it?

      • 1 year ago
        Anonymous

        Black person I have this same condition, ankyolising spondylitis, and vascular ehlers danlos syndrome. Good for you for sticking up for her, but I promise she wouldn’t do the same. I’ve made this mistake twice and been cheated on both times. You’re settling because you’re comfortable

        My post. You’re 100% right, I’m actually just being a jaded lonely homosexual because I have trust issues and am ethically identical to you just have had the complete opposite environment throughout my life. The gif I attached is me 4 years ago not knowing I had these conditions, with all of my trainers telling me to continue doing this, and I thought I was strengthening the part along the spine that I was trying to, when in fact I was killing myself. I would not recommend weight training. I 100% understand her nerve problems, yoga and stretching are probably best. If weightlifting, small weight but if it’s pressing on the nerve you’re realistically damaging yourself more than helping. The thing with nerve pressure, at least in my anecdotal experience, is that if you’re lifting and a nerve is pinched, that area gets WEAKER instead of stronger because the nerves down the nerve line overcompensate as it paralyzed the primary nerve and surrounding proprions. The other thing few realize, is that nerve pain affects your mental state and personality, as more nerves get pinched you genuinely go into fight mode and the more your vagus nerve etc (it’s all in the same cranial nerve area your gf is affected by) the more one can start to depersonalize. Ice works best for me (heat makes it worse personally) but the second I take the ice off I’m back in unbearable pain. I’m sure her pain/dysfunction is less severe than mine (not to minimalize her pain or suffering by any means), but I’ve had no luck fixing this and doctors just prescribe me Xanax, Vyvanse and lyrica which I ended up overdosing on on NYE because the pain was too much. I’m either going to overdose on pain meds or actively take my own life, I’ve pushed away most I love on purpose for this reason. You’re a genuinely great man for helping her with this, good for you for putting in the effort. You have a good head on your shoulders. Iwish the best for both of you. Post limit

  10. 1 year ago
    Anonymous

    there is no god

  11. 1 year ago
    Anonymous

    She'd better swim than lift weight that can put pressure on her spine.

    • 1 year ago
      Anonymous

      Yea she likes swimming and said water is good, that might be a good thing to start with.

      https://i.imgur.com/ahiHSeK.gif

      [...]
      My post. You’re 100% right, I’m actually just being a jaded lonely homosexual because I have trust issues and am ethically identical to you just have had the complete opposite environment throughout my life. The gif I attached is me 4 years ago not knowing I had these conditions, with all of my trainers telling me to continue doing this, and I thought I was strengthening the part along the spine that I was trying to, when in fact I was killing myself. I would not recommend weight training. I 100% understand her nerve problems, yoga and stretching are probably best. If weightlifting, small weight but if it’s pressing on the nerve you’re realistically damaging yourself more than helping. The thing with nerve pressure, at least in my anecdotal experience, is that if you’re lifting and a nerve is pinched, that area gets WEAKER instead of stronger because the nerves down the nerve line overcompensate as it paralyzed the primary nerve and surrounding proprions. The other thing few realize, is that nerve pain affects your mental state and personality, as more nerves get pinched you genuinely go into fight mode and the more your vagus nerve etc (it’s all in the same cranial nerve area your gf is affected by) the more one can start to depersonalize. Ice works best for me (heat makes it worse personally) but the second I take the ice off I’m back in unbearable pain. I’m sure her pain/dysfunction is less severe than mine (not to minimalize her pain or suffering by any means), but I’ve had no luck fixing this and doctors just prescribe me Xanax, Vyvanse and lyrica which I ended up overdosing on on NYE because the pain was too much. I’m either going to overdose on pain meds or actively take my own life, I’ve pushed away most I love on purpose for this reason. You’re a genuinely great man for helping her with this, good for you for putting in the effort. You have a good head on your shoulders. Iwish the best for both of you. Post limit

      Thank you for your advice, its best to hear from people who have the same/similiar conditions. After all i cant know how she feels and what she is going through. I dont know how it feels to be in constant pain unless you take opiod or some shit that numbs the pain. She took peace with her condition and is still really cheerful even with that condition. I am kinda impressed with people like you and her, being still strong even though having this condition and still carrying on with life. Thank you for your advice i will suggest the thing with ice, maybe it helps her a bit. In general i see much doomer stuff online. I know it sounds hard but most people see negative stuff (women cheating, having high count of partners or being to picky) which demoralizes it. I noticed how often on IST or on the internet in general negative shit is posted. And most people (just like me before) tend to be self destructive, when we have good things, we second guess them and destroy things that make us happy. All experience is individual. Im sorry about the bad experience you had but the future is always variable and can go all ways. Like look at mr metokur, he is literally dying with aids cancer and his gf still stays with him. So that scenario is not impossible, so it could also be possible for you aswell. I hope you find joy had hope in your life even with your condition. I know you can. Im really greatful for your feedback, i also wish the best and happiness to you.

      • 1 year ago
        Anonymous

        Yes start with swimming. It's one of the best forms of cardio and won't feel like work if she really enjoys it. I haven't read all of the thread, OP (I'm a bit lazy) but what is her diet like? Does she cook for herself? Having a good diet of whole foods and low processed shit could also help with her overall energy and well-being. Plus everyone could benefit from zinc, Vit d3, and magnesium supplements granted they're bioavailable forms

        • 1 year ago
          Anonymous

          I think she takes Vitamine d3 and Magnesium. Women need even more Magnesium because of the period, or so she told me.
          Imo her diet is shit but we are working on that step by step. Yea, i will suggest her something with swimming.
          Also she can cook and has a passion for it but in generall her diet isnt good.

      • 1 year ago
        Anonymous

        Happy to help, it’s all I’m good for. I know the demoralization mindset isn’t great, and I hate it too. You’re absolutely right about the self destruction thing. Fell in love with the only girl I’ve truly cared about this year. She sent me the nicest PDF when she was out of town asking me to come be with her but on that same night, I ended up blacking out accidentally on pain meds and destroying my apartment with no recollection, it’s happened twice now with no recollection on my behalf. When I read that PDF that night, it sounded like she was friendzoning me, but I read it again on New Years and I think she was genuinely the one that was supposed to be my wife. The meds and my toxic perspective made me literally delusional, which makes the pain exponentially worse for me as it causes my muscles to constrict to the point where my body turns purple due to lack of circulation. Pushed her away out of self hate because I couldn’t love myself, and couldn’t believe someone else could either, and it’s all I’ve thought about for 6 months. I’m not worried about finding someone, I’m worried about how I’m going to cope with throwing away this one specifically. Up for 60 hours at a time, eat twice a week because my autonomic nervous system doesn’t work, and then I do sleep and then dream about her, even after plenty of opportunities with others. I hope I don’t wake up every morning. Cherish her man, I deserve to be dead and alone, I’m glad you’ve both communicated well enough to even get to that point. Never take your health for granted, or those who genuinely care, I cannot describe the loneliness it can cause. The swimming idea is a good one too, I didn’t think of that. Appreciate your kind words.

        • 1 year ago
          Anonymous

          Going to bed so this will be my last message. I dont know if anything i say helps because i will never understand how it truly feels to have this condition.
          But to me it sounds like you have no inner peace with yourself. I think you should sort things out and accept what you are, take the pain as a part of you. Maybe try meditating and either focusing on the pain or when there is no pain focusing on the void (having no thougts).
          Being born means you deserve to life and death will come soon enough for all of us. So try to find joy for yourself. There are many undiscovered things, something might give you happiness and calmness.

          • 1 year ago
            Anonymous

            You're right with everything you say. Appreciate you. WAGMI

  12. 1 year ago
    Anonymous

    euthanasia

  13. 1 year ago
    Anonymous

    I’ve got two cysts your gf could drain if you know what I mean…

  14. 1 year ago
    Anonymous

    Brother, that pussy better be unbelievable to stay with her. She is going to get worse and become an invalid as she ages and you'll have to so everything for her. And she will stop having sex before it gets that bad.

  15. 1 year ago
    Anonymous

    She could do exercises that don't load the spine much. Effective bodyweight exercises (not yoga) and well made machines is the way to go.

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