Cancer anon here. I had emergency surgery April 2022. The stomach cancer literally perforated my stomach and it took them 8 hours to clean me out and I ended up with a bariatric surgery. Chemo and radiation over the summer and I did fine over the winter. I worked myself up to eating healthy amounts of calories.
In March this year I started not being able to eat or drink anything. My oncologist was out of country doing charity work and I had to pull some strings to get things moving again. I started losing a lot of weight. I basically had to force myself to eat anything. I remember for easter I could only eat like 1 ounce of chicken and a piece of broccoli. Even drinking like 4 ounce of water is like pounding a gallon of water.
I lost my landscaping business that I had built up over the years. I just couldn't be reliable to my customers. Luckily I'm stable enough to still have my house and I have pretty decent insurance. Now I'm on disability because I was diagnosed with stage 4 cancer on the initial pathology even though the oncologist downgraded it to stage 3 (i think out of empathy).
When I eat even a small amount I'm fucked for hours. I have to lay down on my left side and burp for hours. Otherwise the nasuea just fucks me up and I'm blowing chunks. And everything is coming out.
I haven't enjoyed a meal in over a month. I get anxiety over eating. Whatever cheat meal you can dream of I could let sit in front of me and rot without a bite.
I haven't worked out in over a year and I know I'm at 50% of what I was. I tried a common hike in november that I used to do all the time and had to call a ride home half way.
Everything sucks. I just want to sleep all the time. I don't want to take care of my house. I don't want to cut my grass. I constantly think about weed even though I only started smoking on chemo.
Obvious but have they tried zofran? Or even one of those THC compounds for committing?
Have you seen a behavior therapist specialized in eating? One focused on physio-behavioral conditioning like Pavlov's dog, not so much thoughts.
Repeated pairing of an intense aversive stimulus can condition other stimuli as aversive over time, a snowball effect.
Have you seen a palliative care doctor?
What nutritional tests have they done? Are you anemic? Low on vitamin D?
Sugars and nutrients can be absorbed in your mouth without swallowing them. This can keep up your energy and maintain some of your health. Involving a dietician would be ideal.
That legitimately sounds like hell.
I had some gut issues but obviously nothing like what you're experiencing. What I'm about to suggest may sound like quackery or stupid, but hear me out, it may help you. My mom turned me on to this sort of stuff. When she was younger she took antibiotics for literally months because doctors told her it was safe and it obliterated her gut microbiome. As you know chemo does similar things; it destroys even healthy parts of your body. Her issues were bad but not quite as bad as yours. After several years of trying to heal her body with doctors, but with nothing working, she moved away from MDs who used prescription medications and moved towards holistic, more nature-oriented and dietary solutions. It has made an enormous positive impact on her quality of life and is slowly working to heal her body. There are a lot of snake oil salesmen, yes, but there are also a lot of legitimate doctors and researchers who are at the forefront of medicine. They don't turn completely away from "western" medicine, but approach problems from different perspectives other than "here are a list of pills and treatments we can try and if they don't work that's it." Nutrition may make a huge difference. I'm not talking about not eating tomatoes or getting particular macros. I'm talking about very intense programs that are designed, scientifically, to produce certain results and help your body heal itself. There's this wellness institute in Florida called the Hippocrates Health Institute that runs an alternative medicine and nutrition and lifestyle based cancer program. It's very granola/hippie, but when I visited my mom there I met some people who they were legitimately helping (including my mom). I'm not trying to sell you on that place. But alternative medicine and the ideas those hippies have seem to have some merit. It may be worth looking into those sorts of things. Leave nothing off the table.
The stuff they do at that center seems to help a bunch of people. They take people from all over the world with cancer and many (if not most) beat cancer at some point after they leave, based on what they learned. Again, I'm not pushing that particular place, just the idea that alternative approaches are worth looking into.
Lastly I'd say please wear the proper PPE and wash your hands when using lawn chemicals. They ban a lot of that shit in Europe because they know it's either carcinogenic or otherwise toxic. Best of luck to you.
I don't know whats going on in my gut. I've never had issues like this in my whole life. I was always the guy who could eat anything and not get sick. Now I am lined up to see a gastro specialist and a urologist. My oncologist is a gastric specialist but she's connected me to those other specialists. I've had another biopsy this april and they sent the pathology to hopkins. They don't think it's cancer again. They think it might be complications from the surgery but they're not sure. It just doesn't seem likely to me because even though it was an emergency surgery, thousands of bariatrics are performed each year electively.
I can't even go out to eat with people now. I don't even want to go on hikes with my dog. Nothing about eating is enticing to me. Meal prep is stupid. Nutrition. Macros. I just don't give a fuck anymore.
I've thought maybe its just time to switch it up and maybe give up. The thought of strenuous activity just makes me sick. I imagine its like getting drunk then going on a run. I don't feel healthy.
I never really had any emotional reaction to getting cancer in my 30s. I've known people as a kid who had cancer so the thought of it not being fair or whatever never came into my head.
However this not eating part just sucks. They say its not cancer coming back but something just doesn't work right in my gut. The ass kick of you may never make any sort of meaningful comeback physically because you can't eat food is the real fucker. They said its not cancer. They said its not from the 8 weeks of radiation direct to the stomach. They said it might be from the surgery but its been a year since then.
The greatest addiction I ever had was lifting and eating. I know you bros know the feeling when you know your body is induced into that anabolic state and your just housing food. That was my feeling. I never drank or did drugs. I just liked knowing I was growing. I fucking loved it. If you know you know.
The last two weeks between being in hospital and staying at my parents house all I wanted to do was sleep. Not gonna lie all I wanted to do was get fucked up on weed. Deep down I know thats the bitch way out and I need to put my shoes on and get after it but I just feel like shit. So I just dick around online listening to motivational shit but it just doesn't hit like it used to. It used to be all I needed was a 30 minute motivational video and I was in the gym at 11pm or out the door for lunch for a 4 mile hike with my 40 pound vest on. And I loved it.
Now I'm fucked. On disability of which I'm grateful but my health is 50% and my business is gone. I feel like all I can do is hope the doctors can figure it out but gastric shit online is a giant mess and I've basically been told I just have "to live with it" unless they cut me open to see if the surgery was fucked.
In the meantime they just have me take metoclopramide with "meals" but I'm still not keeping anything down. They said its not cancer again. They said there is no obscructions. I'm approaching the limits of my care network and my sanity. If it wasn't for my few friends and immediate family I would probably not be around just to honest.
Do any anons have gastric issues? I honestly don't like talking about my problems in real life. So many people are just full of shit. I remember when I was in hospital after getting my stomach removed some people came to see me and they were like "yeah I can't eat tomatoes myself". It's just so full of shit. I'm not saying other people don't have problems but 90% of people who can't eat tomatoes are not losing 10 pounds in a month because they literally cannot eat. Fuck me I can't tolerate another summer of not working, not lifting, and not eating. I never asked for anything my only wish is to eat again. I don't even want people knowing I have cancer I just want them to see me getting after it and eating.
If you're religious, try the Surrender Novena. It's extremely powerful.
No other tips, except that apple cider vinegar cured my gut issues, but this may be minor leagues compared with your situation. Whatever you do, don't give up. Someone, who knows who, is count on you.
Ill bump this just to hope that someone out there can help you out just a bit. I hope you can get past this and look forward to life again. Stay strong bro
I had stomach issues but nowhere near the extent that you did. However, glutamine was extremely helpful in repairing my gut lining. It honestly was a game changer for me.
>The stomach cancer literally perforated my stomach and it took them 8 hours to clean me out and I ended up with a bariatric surgery
Man, i remember when this happened to my aunt, this is really tough anon. I don't have any tips for you but you can have this bump. May you start gorging on food soon bro.
did your aunt burp a lot. i can't eat anything without laying on my side and burping like a baby for hours. i don't know where all the fucking wind is coming from but i could probably power a small vehicle like this.
She was over 60 and the cancer spread pretty much everywhere in her torso at that stage, so she was just "fed" intravenously for a while. Very different from your case thank God. Maybe some anon has some valid tips for you, cancer's way more common than I used to think.
I use Greek yogurt/ kefir/ filmjolk with all meals because it stops me burping and getting heartburn.
No thoughts only prayers. Stay strong king
maybe try Burzyński clinic?
what I'm suffering isn't really cancer its just some sort of compilcations. gastritis to be general. gastric care just seems so wishy washy to me and I don't know why. i guess everyone has tummy issues.
really sorry to hear this bro honestly.
are they opening you up again to check?
they said that would be the last resort. i've already had endoscopy, CT, and PET scans. they said they really can't see the scaring or whatever without cutting me open so last resort its another exploratory surgery.
good luck man. if you have not read about it already read into dumping syndrome which i've heard can come about after gastric surgery.
and don't bother with ray peat he's a retarded quack.
I wish you the best.
My advice would be to start looking into Ray Peat's stuff. He has some recommendations for cancer, beyond his basic recommendations to feel good.
have you tried detoxing your gut
tried everything bro. i had an ng tube in my stomach last week for several days. kombucha, yogurt, kefir. im open to everything.
do you drink any alcohol or smoke? are you sure that its a stomach problem?
asking this because it could be a liver problem (cirrhosis) if your doctors cant find any problems with your stomach
no its not liver. i never smoke or drank.
Roll to send healing energy to cancer anon
I'm real sorry to hear that, anon. Cancer is a massive fucking drag. Keep pushing.
What were your initial symptoms at the start of the cancer? did you catch it late or was it just a fast? also did anyone in your family had a history with any type of cancer?
sorry if it's to many questions I'm a little hypochondriac and don't want to live that scenario
symptoms were threw up a couple times but it wasn't anything too frequent so I overlooked it. when my stomach preforated i knew it was serious. on the ground and sweating instantly. 3 days later i had surgery. it is a genetic thing. look up CDH1 mutation. my brother is getting tested for it now but we don't know where it came from. we are working on all that.
Jesus man, I'm sure your going to make it. Stay strong brother
best thing is i never wanted kids. they would have most likely been fucked. if my brother has the mutation it is advised he get his stomach removed and he has kids so that will be the next thing.
I won’t pretend to have gone through anything as severe but I did go through a similar phase where I couldn’t eat and lamented my inability to make a comeback for months. I thought I’d never be able to even eat at maintenance again.
I developed ulcers and a histamine intolerance kind of out of nowhere. Mine was caused by a severe deficiency of vitamin D which I developed because I moved to a new state where I had extreme allergies to outside stuff. Anyway it seems like if you were just kinda chilling inside battling the cancer you could have got low vitamin d. It takes a while to correct but after 3 months or so I can eat anything I want again.
Good luck. It’s hard for me to believe vitamin d deficiency could fuck my digestive system so incredibly hard but it did.
Which doctor/specialist ordered the lab that figured out it was vitamin D deficiency?
I went in to a GP for an H. pylori bacteria test and did a general blood panel that had vit D as well. My vit d was like 8 on a healthy range of 30-70
I think you need a specialist who is general enough to know a lot of different things to trouble shoot, but specialized enough to know the nutrition, psychology, and gastro involved. I'm thinking that may be a palliative care doctor.
My worry is that you're in a spiral: you have a genuine physiological problem, but your nutrition is so poor that your energy and nutrients are laying you low, this effects your psyche and physiology even further. Perhaps you stress over not being able to eat, this triggering your fight or flight reflex and exacerbating stomach emptying issues. It may not just be one big problem, but a dozen small problems acting in concert
Working with a real pro to carefully managing the types of food you eat, when you eat them, when to take medications to get the desired effect, accepting and building up coping ability for any anxiety and depression (but not judging yourself and getting depressed if you aren't meeting your goals). With the hope that once you get your body and head back on track in a structured program that eventually you can go back to a more normal relation with food that doesn't require all that structure.
Realized I replied to wrong poster, whoops.
Anon see a functional medicine doctor when you get a chance.
Once had a gut infection.
My farts were so explosive, biggest in my life and they reeked like burnt asphalt, stomach hurt too.
The functional medicine doctor gave a pill that I think had wormwood(don't quote me on that) in it and other herbs and my infection went away.
damn im sorry to hear this bro that is tough, has your doctor talked about something like a broviac or a g tube, they are cumbersome but they sound preferable to your situation. stay strong
Food is life anon. My mother starved herself to death last summer due to no appetite. She refused almost everything I brought her. Near the end, I was lucky if I could get her to eat 300 calories per day. Illness and disease compound without nutrition. So even if you don't feel like it...eat. Force yourself if you have to. Chug a liquid diet if necessary. If all else fails, look into a feeding tube. But eat. Or die. Your choice.
Have you received the free gift of eternal life anon?
If you believe Christ Jesus died for your sins, was buried and resurrected the third day, God gives you eternal life for free, all your sins are pardoned.
>Jesus said unto her, I am the resurrection, and the life: he that believeth in me, though he were dead, yet shall he live:
John 11:25 KJV
>For by grace are ye saved through faith; and that not of yourselves: it is the gift of God: not of works, lest any man should boast.
Ephesians 2:8-9 KJV
Forgot to mention, use the King James Bible(the true Bible) and a Noah Webster 1828 Dictionary(either book or app) with it anon.
I'm sorry you're going through this.
I can't pretend to know your pain.
I've been to the emergency room several times before though and have experienced terrible pain and misery and was in a wheel chair at one time too.
I learned nobody knows your pain.
I'll pray for you anon.
Do carnivore diet.
Every day I pray to get cancer because I am too afraid to kill myself. I pray to get stage of cancer that would qualify me to be in a suicide pod in Europe or something so i could fly there and do it. Or just assisted euthanasia in Oregon.
Praying for you anon. You'll make it.
What's your prognosis looking like? What's the road to recovery?
Follow your doctor's advice btw, not anyone here. Love you anons but cancer is unironically for the experts (cringe term aside).
I'm not a religious man so prayer would be pointless, nevertheless I really hope you heal for good and lead a happy life afterwards. Godspeed anon.
do shit tons of weed
Get Afghanica strains like hash plant, bubbha kush, master kush. You want them tell smell like skunk and rubber. Those will help you eat
Hope you get better bro, wish you all the best.
I was born with glass bones and paper skin. Every morning I break my legs, and every afternoon I break my arms. At night, I lie awake in agony until my heart attacks put me to sleep.
Fuck that is rough. Hope you make it trough.
I am so sorry
Had some stomach issues too but your life is agony