anyone here had a colostomy?

anyone here had a colostomy? i might have to get my large intestine removed, and im wondering what kind of life changes you guys have had to deal with. im mostly wondering if i will have to permanently change my diet, or what happens when you remove part of your gut microbiome

  1. 2 months ago
    Anonymous

    Registered Nurse here

    Imagine everywhere you go for the rest of your life you smell like shit. Your house smells like shit. Your car smells like shit. You smell like shit. At public gatherings people will pinch their noses and try to politely ignore the horrific smell of shit which you will carry everywhere you go. Your friends will politely disassociate themselves from you and invite you less and less to gatherings. Your partner will leave you. Your work will most likely make you redundant, fire you or make you work from home.

    Everything and everyone you hold dear will leave you and you will be completely and utterly alone, smelling like shit, until you have a nice day and Paramedics break down your door and complain that the place smells like shit while they scrape you off the floor.

    My medical advice to anyone who is about to have some kind of life-changing pathology is to say goodbye to your friends and family and then have a nice day.

    • 2 months ago
      Anonymous

      Very stupid post

      • 2 months ago
        Anonymous

        >"noooo you have to coddle my feelings telling the truth is bad!"
        Go back to facebook grandma

        • 2 months ago
          Anonymous

          Post body

          • 2 months ago
            Anonymous

            197cm
            118kg
            Your turn bitch

            • 2 months ago
              Anonymous

              wtf, you're a catman???

              • 2 months ago
                Anonymous

                similair to OP i suffered a terrible medical accident

            • 2 months ago
              Anonymous

              100% not 6'5"

              • 2 months ago
                Anonymous

                >moving the goalpost
                how about you post body cunt

            • 2 months ago
              Anonymous

              not even very muscular, just kinda fat. alter your diet and get more cardio. i suggest kickboxing and jiujitsu to everyone for cardio.

    • 2 months ago
      Anonymous

      Finally some honesty from the Medical Profession

      • 2 months ago
        Anonymous

        underrated kek

    • 2 months ago
      Anonymous

      relative has a poop bag. the poop smell is there, but it's mellow and fruity.

    • 2 months ago
      Anonymous

      I know people with colonostomy bags and they do not smell like shit.

    • 2 months ago
      Anonymous

      I know a guy was a colostomy bag. I've hung out with some a couple dozen times to got it. And only once has it just smelled like shit.
      Honestly he's doing way better than another friend who will just fart in front of people at age 36.

      • 2 months ago
        Anonymous

        >Honestly he's doing way better than another friend who will just fart in front of people at age 36.

      • 2 months ago
        Anonymous

        >who will just fart in front of people at age 36.
        oh god I have done this but only in front of my family

    • 2 months ago
      Anonymous

      >mentally ill, hateful and chins shitposters are the people working in the overpriced medical care in the land of the sharts now
      Imagine living in that 4th world shithole these days

    • 2 months ago
      Anonymous

      My dad had a bag. Leaked in the car once and was disgusting but otherwise, no he didn’t smell like shit

      • 2 months ago
        Bottom Randy

        > Had

        ?

    • 2 months ago
      Anonymous

      Ignore the male nurse gay. If your hygiene is halfway normal nobody will notice. I have no tips for you on diet, good luck my friend.

      I knew an older guy who had pretty extensive surgery which ended in a colostomy bag. Never once did I smell poop, and I was around him weekly. He made jokes about it here and there but his biggest complaint is that you have zero control of when it fills. He said they were on a long car trip after visiting some relatives and he was afraid the bag was going to bust, it had become so full.

    • 2 months ago
      Anonymous

      >Everything and everyone you hold dear will leave you
      "I am the Dung Eater! A scourge upon the living!"

      • 2 months ago
        Anonymous

        based omenmaker bro

    • 2 months ago
      Anonymous

      >Registered Nurse here
      you're not a nurse, you're just a mentally ill incel living in his mom's basement.

    • 2 months ago
      Anonymous

      Physician Anaesthesiologist and Intensive Care Resident (non-american, combined training pathway). The long term care of colectomies is not something I am familiar with, however we look after colectomies post operative in the surgical ICU and so have to be fairly familar with them, and very familiar with the immediate to short term complications.

      If I could fire all mid levels from every hospital I would. They are typically quite incompatent, routinely act out of role and push for more responsibility until they inevitably fuck up. Once they fuck up its Ehhh Call the Doctor stat im just a mid level resposibility off-loading because they're not good enough to deal with shit going sideways.

      Being a good procedural doctor is not about being good at doing procedures, its about being good at damage control when they don't go so well. Anyone could give a straightforward anaesthetic, until it goes wrong, then you absolutely do not want some mid level not understanding the pathophysiology of whats going on to make an arse of your care and leaving you in a heap.

      Anyway, this bitch has got a bunch of things wrong.

      1st. If you are having all of your large bowel removed you will have an ileostomy. This is where the ileum (terminal portion of the small bowel) is brought to the skin. It will not smell like shit cause the classical shit smell is a consequence of stercobilinogen which is produced in the large intestine by gut bacteria breaking down bilirubin metabolities. While the ileostomy may not smell great it wont smell classically of poo.

      2. The bag is hermetically sealed. Smell doesn't leak out of a well sealed bag. Your arsehole would smell if I sniffed it while you are taking a shit so yes, the stoma may smell with the bag off, however with the bag well sealed that will not happen.

    • 2 months ago
      Anonymous

      Post your hospital badge and diploma. You're likely a male equivalent of a roastie who had to repeat the NCLEX.

      That said, as long as one manages their colostomy bag and makes sure not to get it all over the fuckin place it should be fine. Empty out ever 1/3, dump it in a way it won't get on your or your clothing, and wipe it up well with wipes. If you're paranoid a dab or two of cologne on yourself (not on the colostomy unless you enjoy suffering) might help.

      Diet changes will depend on what location of the colostomy it is. Ultimately you're gonna have to eat smaller meals more frequently and make sure to maintain hydration.

    • 2 months ago
      Anonymous

      German here. Scat is my fetish

    • 2 months ago
      Anonymous

      Nah this is definitely not true. My aunt has one and she has never stank of shit.

    • 2 months ago
      Anonymous

      Finally another bag bro.
      Yup, I spent 3 years with a colostomy bag for the same reason, ulcerative colitis.
      Honestly I was so relieved to go onto the bag because it gave my life back. After being sick for so long you forget what it feels like to not be in pain 24/7.

      I've since had the reversal and now have a J pouch for the last 10 years.

      Ask me what ever you want and I'll give you honest answers from someone who has been in your shoes.

      Ignore this post. It's complete nonsense.

      • 2 months ago
        Anonymous

        What is a J pouch? Do you have a little string you can pull to empty your bowels? Glad you are doing better anon.

          • 2 months ago
            Anonymous

            >The feeling of having to go take a shit is the same
            so you still feel like having bowel movements, but it just goes into the bag instead of out your butthole?

            • 2 months ago
              Anonymous

              Sorry I should have clarified. The normal bowel movement feeling is what I feel now that I have a j pouch. I'm not on the bag any more.
              While I was on the bag though, you have no control over when your small intestine will pump the shit out into the bag. You can sometimes feel gas come out, but I'd never feel any urges to go.

              • 2 months ago
                Anonymous

                thanks, that makes sense. is there a risk for infection when you have these bags? having a direct opening to your intestines sounds like a risk if you end up in a tough situation where you lose your bag

              • 2 months ago
                Anonymous

                I guess but you would have to be very careless to just loose your bag and leave the stoma exposed. But it's like any opening in your body, I'm sure if you rubbed your dick hole in the dirt it would probably get infected.

          • 2 months ago
            Anonymous

            Nice abs lost body and ass

      • 2 months ago
        Anonymous

        im not op but i have a question, when you poop does it feel different than before you had the issues?

      • 2 months ago
        Anonymous

        bros how do i avoid getting one of these, what are the causes of needing one? does your asshole just stop working? fucking scary

      • 2 months ago
        Anonymous

        https://i.imgur.com/KNSUNBa.jpg

        anyone here had a colostomy? i might have to get my large intestine removed, and im wondering what kind of life changes you guys have had to deal with. im mostly wondering if i will have to permanently change my diet, or what happens when you remove part of your gut microbiome

        I too have a J pouch after 3 years with a bag. I had to have several more surgeries to remove more pieces of colon before my doc here told me i'd be stuck this way forever.
        I got a second opinion and ended up getting a J-pouch surgery in Cleveland Clinic instead. Fuck that old doc. I got social security disability $$ after several tries, too, which helped while recovering and schooling.
        Colostomy bag stinks if you don't change it daily, and medical insurance costs for the bags can be high but you'll have to dispute for them to cover enough bags for each day. Definitely don't lose them or fuck any up or your insurance will fuck you. It's a miserable experience in the bag and they leak if you aren't careful and aren't eating a fiberous diet. don't eat runny shit like eggs and chocolate.

        I got a hernia and had to have that fixed in the spot I was cut open for so long for, but I can do jiujitsu and muay thai and stuff now again like I used to. I just have to shit like every couple hours. Your guts and ass hole take like a year to get used to all the shitting. Avoid very Hispanicy stuff and avoid stressing yourself out. you'll get pouchitis from this probably inevitably, where your insides feel hot and you feel more constipated and sore in there. Metronidizole and Ciprofloxacin both at the same time tend to take this bacterial infection away which causes this. It can creep up on you and last for weeks, but overall dealing with pouchitis and shitting all the time is 100000x better than dealing with severe ulcerative colitis/crohns.
        Sometimes I shit the bed a little but I try not to eat late or if i do its high fiber, and try to sleep with a little doggy pee pad or the Covidien ones they use in the hospital under me (but them expensive).
        I'm only now starting to find gainful employment as I'm a bit retarded and bad at studying and stuff, still living with parents without a girlfriend and contemplating suicide sometimes. but...

        • 2 months ago
          Anonymous

          You're doing a good job bro, keep it up. Life dealt you a shitty hand but you're still gonna make it

        • 2 months ago
          Anonymous

          anon you are a warrior for going through all this and not ending it.
          you have to keep going

        • 2 months ago
          Anonymous

          unironically respect you for slugging it out and hope good things come your way. That roastie on youtube has a colostomy bag so maybe there's support groups with girls in similar situations?

    • 2 months ago
      Anonymous

      >Registered Nurse
      Are you talking OP or you average day on the job?

    • 2 months ago
      Anonymous

      The same goes for every Indian person I know

    • 2 months ago
      Anonymous

      is this an American thing?

      • 2 months ago
        Anonymous

        Must be all the high-fructose corn syrup guzzling they do

    • 2 months ago
      Anonymous

      You are propably incompetent gay murrican nurse, the same kind of morons who crush p.o medicines, mix it with water and use as an IV meds and wonder why patient died 😀

      All of your post is fucking nonsense

    • 2 months ago
      Anonymous

      > Paramedics break down your door and complain that the place smells like shit while they scrape you off the floor.
      I’m dying, Lmao.

    • 2 months ago
      Anonymous

      >T. A lying gay
      Ignore this anon, my grandmother had a bag for years, never smelled once even until the day she died.

    • 2 months ago
      Anonymous

      You are both the same person and OP made that reply so he could get genuine answers to his question

      • 2 months ago
        Anonymous

        how do you know that?

      • 2 months ago
        Anonymous

        Speaking from experience anon?

    • 2 months ago
      Anonymous

      Literally not remotely true lmao. My mum has a permanent colostomy bag and you would literally never know. She even does mad shit in the gym like rings.

    • 2 months ago
      Anonymous

      nice try, my woman stuck with me through surgery getting the bag and getting it taken down.

      never had anyone mention a smell. as long as they can hook you back up to your asshole later having an ostomy is fine

    • 2 months ago
      Anonymous

      Kek i have never seen someone so BTFO in this shithole

    • 2 months ago
      Anonymous

      i swear ive seen this post on here before a couple years back when another colostomy anon posted as well

      there is some kind of giga autist that has a seething hatred for anyone with this medical procedure on IST

    • 2 months ago
      Anonymous

      I'm sure dogs will love him tho.

      I agree tho, suicide is painless.
      .t Male psychiatric nurse

    • 2 months ago
      Anonymous

      Ignore this OP. It is a lie.

      https://i.imgur.com/KNSUNBa.jpg

      anyone here had a colostomy? i might have to get my large intestine removed, and im wondering what kind of life changes you guys have had to deal with. im mostly wondering if i will have to permanently change my diet, or what happens when you remove part of your gut microbiome

      I know for a fact they are a liar because a old man I met hid for years he was born with a disability that required one. When he was a kid, it was discovered in his Kung Fu class when his shirt accidentally went up. The teacher was strictly against teaching any special kids due to safety issues. The only reason he wasn't kicked out was because of a teacher assistant. The teacher said they would have to go because no one would want spar with them out of fear they'd hit it and burst the bag. The teacher's aid then said they would spar with them, so they were allowed to stay.

  2. 2 months ago
    Anonymous

    Ignore the male nurse gay. If your hygiene is halfway normal nobody will notice. I have no tips for you on diet, good luck my friend.

  3. 2 months ago
    Anonymous

    If gay dudes can get away with not smelling that bad after anal sex has made them incontinent, you can get away with a colostomy bag

    • 2 months ago
      Anonymous

      people just want to be polite when it comes to gay dudes pooping themselves

    • 2 months ago
      Anonymous

      What kind of guys you are fucking? The anal fisters?

      • 2 months ago
        Anonymous

        Homosexual incontinence is common

  4. 2 months ago
    Anonymous

    why are they removing your large intestine?

  5. 2 months ago
    Anonymous

    Why can't they just put the poop bag inside the body?

    • 2 months ago
      Anonymous

      How do you get the poop bag out?

      • 2 months ago
        Anonymous

        Just have a small hole instead of having the entire shitbag outside, then its just a secondary asshole.

        • 2 months ago
          Anonymous

          So you’d use like a vacuum to clean it out. Hmm. You’d still need to replace it every so often but I feel like it would only need to be like once a decade based on fake tit replacements. I worry about points of failure though. If the bag fails normally you just shit on yourself, if it fails here you die of sepsis.

    • 2 months ago
      Anonymous

      Then you get punched once in the stomach and die of sepsis.

      • 2 months ago
        Anonymous

        Maybe attach a relief valve that comes out between your asscheeks?

  6. 2 months ago
    Anonymous

    >ohhh boo hoooo my intestines or whatever
    quit being a fucking baby OP, I'm BALDING

  7. 2 months ago
    Anonymous

    Generally speaking people with a colostomy bag do not have to have changes to their diets and if so they are minimal. It may depend on how much of your colon is removed and where it is removed. Most nutrient absorption occurs in your small intestine but your large intestine reabsorps fluids and salts. I cannot comment on the microbiome changes..

    You may find that the psychological shock of the surgery will be most difficult to come to terms with at first. This happens to most patients though few just get along with it, it depends on your temperament. I would encourage you to be confident with your stoma care if you do have to have surgery, many colostomy and ileostomies are not permanent! I will say my experience working with Stoma nurses has been very good and they are very supportive to their clients. Even if you have your full colon removed, such as in the case of a toxic megacolon, there are still circumstances where the stoma can be replaced with a pouch-anastomosis.

    With regards to how this may affect your work out routines I would recommend discussing this with your physician or GP depending on your country.

    • 2 months ago
      Anonymous

      >pouch-anastomosis
      whats that? an artificial colon, but without the absorption?

      • 2 months ago
        Anonymous

        Pouch-analy anastomosis sorry. Essentially your small intestine is surgically attached to your anus. Also known as J-pouch. I haven't had clients who have had gone through with this procedure so I cannot comment on how it impacts health outcomes and quality of life. My assumption would be that it is not as good as having a large intestine but is better than having a stoma.

        https://my.clevelandclinic.org/health/treatments/21062-j-pouch-surgery

        • 2 months ago
          Anonymous

          i assume stomas let you have more freedom with when you have to use the bathroom? that surgery seems worse if you end up having similar QOL issues that i am already having (increased bowel movement frequency)

          • 2 months ago
            Anonymous

            Not really, once your bag is full you need to empty it, and it will often fill with gas so you will likely end up using the toilet/ emptying the bag more frequently especially if you're prone to gas.

            Pouch patients continence varies, but typrically you'll go the same amount as during a flare up (4-8 times a day really) and how long you can hold this will depend on the strength of your pelvic floor, some patients will be able to hold things for 5 minutes, others 30 mins, it varies but it can be trained post surgery which is why its important to retain some of the rectum and to train the pelvic floor again after surgery.

            These are all things you should be discussing with a doctor or surgeon, though.

    • 2 months ago
      Anonymous

      https://i.imgur.com/KNSUNBa.jpg

      anyone here had a colostomy? i might have to get my large intestine removed, and im wondering what kind of life changes you guys have had to deal with. im mostly wondering if i will have to permanently change my diet, or what happens when you remove part of your gut microbiome

      First time posting, but have experience with this. Building on what has been said here, some excellent advice. You will still be able to eat notmally in most cases, but a lot of ileostomy patients opt for a low FODMAP diet, something which if you haven't already tried might be beneficial even without a colostomy/ ileostomy.

      As this poster has said the surgery and getting over it will be difficult psychologically, so having some support there wil help, you will feel very weak and different after the surgeries, will be a very big change to life which you will need time to adapt to.

      Finally, I would really like to highlight about the pouch-anastomosis, some places they call it a j-pouch or reversal where they essentially construct a quasi-colon from your small intestine which eliminates the need for a bag. This is a really good option which can give most patients a great quality of life. I would discuss the possibility of this with your doctor/ surgeon and whether it would be a possibility. Sometimes patients will need to have an ileostomy first but can be turned into a pouch within a couple of years.

      God bless, OP, I hope you make it through these hard times, brother.

    • 2 months ago
      Anonymous

      The real question is, what happens to your asshole
      Do they sew it shut?
      Why even do the colonostomy and not just remove the problematic part of the colon and stich the rest back to the asshole?
      Why open an entirely new hole with a bag on it while you already have a perfecly good hole with self-shutting mechanism?
      Smells like shitty medical practice to me

  8. 2 months ago
    Anonymous

    I read smoking cigs help reduce inflamtion with UC but you have to smoke 4-5 time a day. I'm under mesalamine and it's working atm. Good luck Op and I hope you pull through this.

  9. 2 months ago
    Anonymous

    Only guys I've know with those wanted to fucking die.
    But they were also over 60 with other problems.
    The guy who got ass cancer removed and can't hold his shit anymore wishes the doctor told him he'd have no control over it and would have rather taken his time left with the cancer and not constantly shitting in an adult diaper.
    Working with old people is a mix of dirty jokes and talking about the time they got cancer or when their friends/family died from it.

  10. 2 months ago
    Anonymous

    > eliminate gluten from your diet (wheat products)
    > no coffee
    > intermittent fasting (2x weekly)
    > drink plenty of water
    > keep your colon

    • 2 months ago
      Anonymous

      > avoid gassy vegetables

  11. 2 months ago
    Anonymous

    if no one protests for moron no one should protest for someone who occasionally smell for a medical condition

    every moron smell 24/7 no matter what

  12. 2 months ago
    Anonymous

    Not contribooting to the discussion but can i just say I nursed a lady who used to let people fuck her stoma. If you're in the market for body horror festishist, you're in luck.jyhj4

  13. 2 months ago
    Anonymous

    Don't listen to the "rn". My dad has had one for about ten years. The changes aren't too bad. Get this thing called a "Stealth Belt" and people rarely know you have one. Definitely change your diet to things that do not produce gas; much less fiber. You can't hold a fart anymore, so anytime you pass gas, it will be very audible and there's no way to anticipate it or hold it back at the stoma. One benefit is that pooping in the woods or in portapotties is a lot easier, you just need to have a water bottle with you to flush out the bag. A really bad thing though is if you get really sweaty or it's super hot out is that the mounting ring around the stoma is held on with an adhesive. If you sweat a lot, and you havent emptied the bag for a while, it can peel off and just drop at your feet. It's happened to my dad I think 3 times in the 12 years he's had it. It's extremely embarrassing and hard to clean up. Another bad thing is that depending on how much of your colon is removed, the liquid content of your stool will be much higher. This will also mean that your stool will absolutely reek when you empty the bag. Highly highly suggest carrying bacteria neutralizing drops called "M2".

    OP, life with a colostomy is manageable, but you don't want one. Why does your doctor believe you need a section of your colon removed? There must be other avenues. Also AMA about colostomies long term.

  14. 2 months ago
    Anonymous

    >thread full of SHIT
    I actually had my colon removed and now got hooked back up to my anus AMA

  15. 2 months ago
    Anonymous

    My friends brother had his intestine removed.
    He had to permanently change his diet (Coeliac disease) but not as a result of the op.
    Amazingly, he can still do contact sports, including rugby, which basically involves being constantly gut checked.
    He's got this powerlifter belt thing and medical grade bag thing specifically for sports that keeps it all together

    Basically doesn't seem to have changed his life in any way I've noticed

  16. 2 months ago
    Anonymous

    I've never once met a person having this kind of shit, what the fuck is wrong with americans.
    This is absolutely revolting.

  17. 2 months ago
    Anonymous

    If you have crohn's, CUT the PUFA/seed oils and fast food ASAP.
    Low carb and home-cooked food is best, if you do have to get it, people with C-bags that eat mostly meat (think carnivore or keto-carnivore) have the smallest amount of discharge.

    • 2 months ago
      Anonymous

      Lust-provoking image to make sure OP sees this

  18. 2 months ago
    Anonymous

    Reading this thread give me some hope since I have to deal with polyps and don't know if I might need a bag. So hoping j-pouch is a viable option for me since my dad had to get his colon remove and dunno if was only losing the colon that cause him to have trouble eating food that give him a hard time or that plus blue collar worker. Either way hope you make it bro O7

    • 2 months ago
      Anonymous

      More details on the polyps please. I had a colonoscopy and they removed a 3mm non cancerous polyp. I’m assuming yours were a lot worse?

      • 2 months ago
        Anonymous

        My last check up was over 5 years ago and that i should watch what I eat. I didn't and last year there was blood. Did a complete reset and fast made sure I eat high fiber food went back to normal but now I have to watch what I eat so I have at least somewhat of a solid bowel movement. So I will know whether or not how fucked I am after my gi doctor do the procedure after august. Would have done it sooner but was going through an unemployment arc until the end of last year and honestly it's mostly fear that delayed me from finding new doctor and getting the refferals after I moved.

  19. 2 months ago
    Anonymous

    This is the fate of all gays

    • 2 months ago
      Anonymous

      i joked around about this shit with a kid in highschool too, and then it happened to me. Guess what, gay.... you're next.

  20. 2 months ago
    Anonymous

    American physician here. No i made no extra money due to covid.
    Anyway, the biggest thing I notice with colostomy patients (ambulatory ones, people who are actually living their lives), is that sometimes you can hear their bowel sounds a bit more pronounced than others.
    You know how sometimes your stomach will rumble and someone will tell you "oh you just be hungry, anon!"? Well with colostomies you can hear those kind of sounds quite frequently. I'm guessing your diet will also play a large part in this. Stay away from the stereotypical American glue diet (as i call it-low fiber), and you should be good.
    With proper ostomy care your skin integrity should be fine, there should be minimal smell too

  21. 2 months ago
    Anonymous

    My dad had the bag and got it reversed. Couple gross situations but that's only because my mom told me about them. I never experienced it. Felt so bad for the man but he seemed to handle it just fine. Worst thing about it, he said, was that it would fill with gas a lot when he slept.

    Good luck man.

  22. 2 months ago
    Anonymous

    This is the most interesting and informative thread I've seen on IST in a long time and I don't even have GI issues.

  23. 2 months ago
    Anonymous

    what is it like being born a garden gnome

  24. 2 months ago
    Anonymous

    Read about irrigation, look up dude called Ben Moon
    "Also look into irrigation if you have a colostomy, essentially it’s a daily colonic that allows you to gain control of your digestion. It’s truly a game changer I’m able to wear a very small stoma cap instead of a large bag. Please message me with any questions, I know how challenging it can be to find real world answers on this topic, especially if you’re active."

  25. 2 months ago
    Anonymous

    My friend's fiance has a colostomy and she gets on alright. My friend had told me that, to her, the worst part has been how socially isolating it is. She's apparently humiliated by it.

  26. 2 months ago
    Anonymous

    this is legit the definition of hell for me personally

  27. 2 months ago
    Anonymous

    I had a sigma resection a couple years ago (pic very related) I thought to wake up with the bag but to my surprise it wasn't there, surgeon decided to try keep my butt functional for it's primary job and it worked so far. It might be your case anon! I wish you all the best. Also I eat whatever I want now.

    • 2 months ago
      Anonymous

      Hot Post more

  28. 2 months ago
    Anonymous

    Ulcerative colitis since my late 20s, now in 40s still with guts intact

    Fuck you this will never happen

    Also lol IST is gay as fuck now 12 years later

    • 2 months ago
      Anonymous

      what, are you on biologics or did you just heal yourself?

      • 2 months ago
        Anonymous

        Combination of a lot of things, immunosuppressants, other drugs like sertraline to reduce symptoms

        Codeine and CBD also help with the worst of the uncomfortable symptoms

        I didn't completely heal but at least my intestines haven't been replaced with a shitbag

        I swear I brought this on myself by taking anti acne medication back in uni but there's alot of itis in my family so who knows

        Btw colitis support groups are filled with hot girls, downside is they may have a poop bag

  29. 2 months ago
    Anonymous

    Ulcerative Colitis here look at my shit. Please send prayers my lifts have been massacred

    • 2 months ago
      Anonymous

      Thats just a popped hemorrhoid, or you just got butfucked a little too hard

      Problem blood in stool is dark

      • 2 months ago
        Anonymous

        Lower gi hemorrhage is red... Transverse colon onwards bloody bright red

  30. 2 months ago
    Anonymous

    Crohn's fag here. Absolute nightmare disease.

    Kept it under control with steroids for years but not have osteopenia, prediabetes and all sorts of fucked up joints and spine. Small intestine is shredded and unlike the large you can't just rip it out and be done with it.

    If i had UC i would 100% have gone for a colostomy soon as possible. Who cares about a bag when it just removes your disease from you.

    • 2 months ago
      Anonymous

      what do they even do if your small intestine is destroyed? do you have to be injected with nutrients?

      • 2 months ago
        Anonymous

        they would put him on TPN - Total Parenteral Nutrition. this is a tube that goes into your heart and through your chest and out your arm. Very uncomfortable, infusions would be every night, and he would have to watch his insulin levels every hour.

        • 2 months ago
          Anonymous

          >if only you knew how bad things were

          • 2 months ago
            Anonymous

            I remember being a medical student on a gastro ward and some tone deaf gastroenterologist was asking someone on TPN to tell the group how great their life was now they had a new TPN formulation that meant they could walk free something like 4 hours of the day rather than 2.

      • 2 months ago
        Anonymous

        My plan? Commit suicide if it comes to it. I've held onto all the gut so far but they've come close a few times to wanting to cut some out.

        First you might have to change your diet, then go full elemental, basically nutrient soup diet. Then if you really have little left you go TPN where they feed you through a large vein but that requires being in hospital most of the day and kills your liver so at that point you're effectively terminal.

        Unironically crohns is a wildly underappreciated disease for how horrible it is. It's probably the single worst disease it's possible to have which won't just kill you within a year or two. I've met plenty of people with it who i just don't know why they haven't killed themselves yet. I could go into all my symptoms but there's not a part of my body that hasn't been permanently damaged from it.

        • 2 months ago
          Anonymous

          *i'd qualify that some other conditions like scleroderma are probably as bad.

          Plenty of worse ones that will kill you though like MND, MS, pulmonary hypertension etc.

        • 2 months ago
          Anonymous

          >I've met plenty of people with it who i just don't know why they haven't killed themselves yet
          its probably because crohns can affect any part of the digestive system, so other people can be lucky enough to not have it in their small intestine

          • 2 months ago
            Anonymous

            It can technically affect anywhere. I have had eye manifestation, joint, nails, nerve, brain, bladder, hearing. I was being tested under neurology for ages prior to my diagnosis as I basically lost all power to my legs and had wild twitches and fasciculations. For some reason every night i'd start having weird vocal twitches too.

            • 2 months ago
              Anonymous

              that's terrible. i always feel envious of people complaining on here about their life problems, and then i have to remember that there are people out there like you

              • 2 months ago
                Anonymous

                Not much to say other than it is what it is. I was never an "ill" person, then at 23 my life just took a whole new direction and that's kind of been the story since. Takes a while to get over the main character delusion and accept your one go at existence is going to be an impaired ill one.

          • 2 months ago
            Anonymous

            I don't mean i don't get why not everyone with IBD has necced - i haven't. But in my hospital stays i've met some people with it with utterly wretched lives. People who have been more or less hospital residents since they were kids, constant pain, operations, living in wards with shit smells and moaning pained patients. Talking fondly about that time 5 years ago they managed 4 months out in temporary government assisted housing before being readmitted.

            More power to them but i couldn't. The lives some people live away from what we all know as normal lives.

        • 2 months ago
          Anonymous

          checked. also stop the doomer shit rignt now. the light at the end of the tunnel for people in your situation are the other healh improvements that come along with having a non-imflammed GI situation. it affects your mental health and immune system greatly-
          im saying this as someone who has gone through it. I was on TPN for 3 weeks

          • 2 months ago
            Anonymous

            TPN as temporary gut rest is very different to requiring it because you've got no small bowel left.

            • 2 months ago
              Anonymous

              aye but ive lived it mate. i could easily do TPN if it meant not having UC side effects daily.

              • 2 months ago
                Anonymous

                Sure - but the issue is that TPN will eventually kill your liver. So the thing is if you lose all your small bowel you're on a time limit.

                Anyway who knows where things will be medically in a couple of decades. Though it's been a decade since i got it and not a lot has come out lmao.

              • 2 months ago
                Anonymous

                Not much to say other than it is what it is. I was never an "ill" person, then at 23 my life just took a whole new direction and that's kind of been the story since. Takes a while to get over the main character delusion and accept your one go at existence is going to be an impaired ill one.

                Have you ever tried homemade kefir? I know it seems very simplistic, but I’ve seen all these stories where people claim it cured their IBD. I’m trying it out right now for my chronic IBS but trying not to get my hopes up.

              • 2 months ago
                Anonymous

                Not homemade but i've done kefir, i take some "study proven gastro-resistant" expensive probiotic daily.

                To be honest though i find what I actually eat doesn't make any difference. I've done all kinds of diets: gluten free, dairy free, carnivore, vegetarian, keto, low carb, paleo etc etc. Whatever causes crohn's i don't think it's just bad bacteria. Now i just eat normally minus too many energy drinks which I kind of rely on to get through fatigue, need to stop that.

              • 2 months ago
                Anonymous

                not him but i do have homemade kefir from raw milk. not sure how much im supposed to drink, but i feel like i should be seeing changes by now. sadly not.

  31. 2 months ago
    Anonymous

    Honestly they need to find out why incidence of this stuff is rising so quickly. Anyone i talk to now knows a few people with either crohns or uc but i talk to people who had it in the 70s and they said it was a rare disease back then.

  32. 2 months ago
    Anonymous

    My brother got shot and had a part of his large intestine removed. He had a bag for 6 months then got the intestine reconnected to his anus. 6 years later, he is living his best life.

  33. 2 months ago
    Anonymous

    Praying for OP. Every (You) is a prayer sent for OP.

  34. 2 months ago
    Anonymous

    40 day fasting.
    You all need to destroy and consume your bad cells.
    Carnivore is good too but not too much meat each day or you will overextended your organs.

  35. 2 months ago
    Anonymous

    Buddy, just fast. Start with 12-12, then 16-8, then 20-4 (2 meals a day), and live the rest of your life on OMAD (one meal a day). Once a month do a 3 day fast. Four times a year do a 5 day fast. You'll be good as new within 1-3 years.

  36. 2 months ago
    Anonymous

    >literal amerishart the thread
    4th world problems for a lifetime of consuming exclusively 4th world tier quality food products. Bottoms up!

    • 2 months ago
      Anonymous

      nice try europoor, dont think you're off the hook

  37. 2 months ago
    Anonymous

    Women most often end up with colostomy bags because of chronic digestive issues from an abhorrent diet, and instead of doctors being heavy handed with this suggestion, and knowing their patients are obstinate retards opt for invasive mitigating procedures. It's disgusting all around.

  38. 2 months ago
    Anonymous

    I got my terminal ileon and Ileocecal valve removed. Didn't get a colostomy thankfully.
    The problem is if I don't take care of my diet I shit like a bastard. I had to stop coffe and other stuff. I also need to take colesteramine everyday (it absorbes the bilis the terminal ileon is supposed to absorbe). Consider yourself lucky if you keeping the terminal ileon.

  39. 2 months ago
    Anonymous

    lol gay walking around with shit sack on his tummy. You're done man

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