anyone here had a colostomy? i might have to get my large intestine removed, and im wondering what kind of life changes you guys have had to deal with. im mostly wondering if i will have to permanently change my diet, or what happens when you remove part of your gut microbiome
Ape Out Shirt $21.68 |
Registered Nurse here
Imagine everywhere you go for the rest of your life you smell like shit. Your house smells like shit. Your car smells like shit. You smell like shit. At public gatherings people will pinch their noses and try to politely ignore the horrific smell of shit which you will carry everywhere you go. Your friends will politely disassociate themselves from you and invite you less and less to gatherings. Your partner will leave you. Your work will most likely make you redundant, fire you or make you work from home.
Everything and everyone you hold dear will leave you and you will be completely and utterly alone, smelling like shit, until you have a nice day and Paramedics break down your door and complain that the place smells like shit while they scrape you off the floor.
My medical advice to anyone who is about to have some kind of life-changing pathology is to say goodbye to your friends and family and then have a nice day.
Very stupid post
>"noooo you have to coddle my feelings telling the truth is bad!"
Go back to facebook grandma
Post body
197cm
118kg
Your turn b***h
wtf, you're a catman???
similair to OP i suffered a terrible medical accident
100% not 6'5"
>moving the goalpost
how about you post body c**t
not even very muscular, just kinda fat. alter your diet and get more cardio. i suggest kickboxing and jiujitsu to everyone for cardio.
threadly reminder pussies will talk shit constantly but will never post body
Finally some honesty from the Medical Profession
underrated kek
relative has a poop bag. the poop smell is there, but it's mellow and fruity.
I know people with colonostomy bags and they do not smell like shit.
I know a guy was a colostomy bag. I've hung out with some a couple dozen times to got it. And only once has it just smelled like shit.
Honestly he's doing way better than another friend who will just fart in front of people at age 36.
>Honestly he's doing way better than another friend who will just fart in front of people at age 36.
>who will just fart in front of people at age 36.
oh god I have done this but only in front of my family
>mentally ill, hateful and chins shitposters are the people working in the overpriced medical care in the land of the sharts now
Imagine living in that 4th world shithole these days
My dad had a bag. Leaked in the car once and was disgusting but otherwise, no he didn’t smell like shit
> Had
?
I knew an older guy who had pretty extensive surgery which ended in a colostomy bag. Never once did I smell poop, and I was around him weekly. He made jokes about it here and there but his biggest complaint is that you have zero control of when it fills. He said they were on a long car trip after visiting some relatives and he was afraid the bag was going to bust, it had become so full.
>Everything and everyone you hold dear will leave you
"I am the Dung Eater! A scourge upon the living!"
based omenmaker bro
>Registered Nurse here
you're not a nurse, you're just a mentally ill incel living in his mom's basement.
Physician Anaesthesiologist and Intensive Care Resident (non-american, combined training pathway). The long term care of colectomies is not something I am familiar with, however we look after colectomies post operative in the surgical ICU and so have to be fairly familar with them, and very familiar with the immediate to short term complications.
If I could fire all mid levels from every hospital I would. They are typically quite incompatent, routinely act out of role and push for more responsibility until they inevitably frick up. Once they frick up its Ehhh Call the Doctor stat im just a mid level resposibility off-loading because they're not good enough to deal with shit going sideways.
Being a good procedural doctor is not about being good at doing procedures, its about being good at damage control when they don't go so well. Anyone could give a straightforward anaesthetic, until it goes wrong, then you absolutely do not want some mid level not understanding the pathophysiology of whats going on to make an arse of your care and leaving you in a heap.
Anyway, this b***h has got a bunch of things wrong.
1st. If you are having all of your large bowel removed you will have an ileostomy. This is where the ileum (terminal portion of the small bowel) is brought to the skin. It will not smell like shit cause the classical shit smell is a consequence of stercobilinogen which is produced in the large intestine by gut bacteria breaking down bilirubin metabolities. While the ileostomy may not smell great it wont smell classically of poo.
2. The bag is hermetically sealed. Smell doesn't leak out of a well sealed bag. Your arsehole would smell if I sniffed it while you are taking a shit so yes, the stoma may smell with the bag off, however with the bag well sealed that will not happen.
Continued from here.
3. If you are young (<50) a J-Pouch anastamosis is an option. This will require three surgeries however.
In the first case the bowel is removed however a rectal stump is left behind as is the anus. A ileal stoma is formed.
In the second surgery folds of small bowel are brought down and a pouch is formed from sewing folds of bowel together. a second temporary ileostomy is fomed to allow this to heal.
In the third surgery the ileosotomy is closed.
With this you can regain a toiliting habit and bowel control. However how you poo will be different as you cannot form solid stool without a large bowel as it is where water is absorbed from stool.
OP dehydration and electrolyte loss is a possibility to keep well hydrated and eat well post operative going down the line, as these changes may be insidious.
In good news however, most if not all nutrients are absorbed from the small bowel in particularly the duodenum and the ileum. A colectomy should not affect your total calorie or nutrient absorption too well. However some fat soluble vitamin loss (vitamins ADEK) is possible. So you might supplement these in tablet form.
Are there cases where the person becomes buttholess?
And, if you leave an anus but nothing ever comes out of it isn't it really convenient for anal sex?
Yes. If an end stoma is formed the anus is closed surgically.
Otherwise you’re left with what’s known as a “mucous fistula” which over time can become dry, irritated and a source for infection
>If I could fire all mid levels from every hospital I would. They are typically quite incompatent, routinely act out of role and push for more responsibility until they inevitably frick up. Once they frick up its Ehhh Call the Doctor stat im just a mid level resposibility off-loading because they're not good enough to deal with shit going sideways.
sounds incredibly based, collect $200k and make the wagie physicians do most of the work. Besides, we all know you're just salty because you work stupid hours for shit pay. not my problem.
BASED
Post your hospital badge and diploma. You're likely a male equivalent of a roastie who had to repeat the NCLEX.
That said, as long as one manages their colostomy bag and makes sure not to get it all over the frickin place it should be fine. Empty out ever 1/3, dump it in a way it won't get on your or your clothing, and wipe it up well with wipes. If you're paranoid a dab or two of cologne on yourself (not on the colostomy unless you enjoy suffering) might help.
Diet changes will depend on what location of the colostomy it is. Ultimately you're gonna have to eat smaller meals more frequently and make sure to maintain hydration.
German here. Scat is my fetish
Nah this is definitely not true. My aunt has one and she has never stank of shit.
Finally another bag bro.
Yup, I spent 3 years with a colostomy bag for the same reason, ulcerative colitis.
Honestly I was so relieved to go onto the bag because it gave my life back. After being sick for so long you forget what it feels like to not be in pain 24/7.
I've since had the reversal and now have a J pouch for the last 10 years.
Ask me what ever you want and I'll give you honest answers from someone who has been in your shoes.
Ignore this post. It's complete nonsense.
What is a J pouch? Do you have a little string you can pull to empty your bowels? Glad you are doing better anon.
See my last picture. Basically they get the last 30cm of small intestine, kink it like a hose, remove the 2 walls touching together to form a reservoir, then make an opening at the bottom of the kink to connect to the ass hole.
The feeling of having to go take a shit is the same. But it's not solid. Think mashed potato.
Pic is of my bag after the surgery
>The feeling of having to go take a shit is the same
so you still feel like having bowel movements, but it just goes into the bag instead of out your butthole?
Sorry I should have clarified. The normal bowel movement feeling is what I feel now that I have a j pouch. I'm not on the bag any more.
While I was on the bag though, you have no control over when your small intestine will pump the shit out into the bag. You can sometimes feel gas come out, but I'd never feel any urges to go.
thanks, that makes sense. is there a risk for infection when you have these bags? having a direct opening to your intestines sounds like a risk if you end up in a tough situation where you lose your bag
I guess but you would have to be very careless to just loose your bag and leave the stoma exposed. But it's like any opening in your body, I'm sure if you rubbed your dick hole in the dirt it would probably get infected.
Nice abs lost body and ass
im not op but i have a question, when you poop does it feel different than before you had the issues?
bros how do i avoid getting one of these, what are the causes of needing one? does your butthole just stop working? fricking scary
I too have a J pouch after 3 years with a bag. I had to have several more surgeries to remove more pieces of colon before my doc here told me i'd be stuck this way forever.
I got a second opinion and ended up getting a J-pouch surgery in Cleveland Clinic instead. Frick that old doc. I got social security disability $$ after several tries, too, which helped while recovering and schooling.
Colostomy bag stinks if you don't change it daily, and medical insurance costs for the bags can be high but you'll have to dispute for them to cover enough bags for each day. Definitely don't lose them or frick any up or your insurance will frick you. It's a miserable experience in the bag and they leak if you aren't careful and aren't eating a fiberous diet. don't eat runny shit like eggs and chocolate.
I got a hernia and had to have that fixed in the spot I was cut open for so long for, but I can do jiujitsu and muay thai and stuff now again like I used to. I just have to shit like every couple hours. Your guts and ass hole take like a year to get used to all the shitting. Avoid very spicy stuff and avoid stressing yourself out. you'll get pouchitis from this probably inevitably, where your insides feel hot and you feel more constipated and sore in there. Metronidizole and Ciprofloxacin both at the same time tend to take this bacterial infection away which causes this. It can creep up on you and last for weeks, but overall dealing with pouchitis and shitting all the time is 100000x better than dealing with severe ulcerative colitis/crohns.
Sometimes I shit the bed a little but I try not to eat late or if i do its high fiber, and try to sleep with a little doggy pee pad or the Covidien ones they use in the hospital under me (but them expensive).
I'm only now starting to find gainful employment as I'm a bit moronic and bad at studying and stuff, still living with parents without a girlfriend and contemplating suicide sometimes. but...
You're doing a good job bro, keep it up. Life dealt you a shitty hand but you're still gonna make it
anon you are a warrior for going through all this and not ending it.
you have to keep going
unironically respect you for slugging it out and hope good things come your way. That roastie on youtube has a colostomy bag so maybe there's support groups with girls in similar situations?
>Registered Nurse
Are you talking OP or you average day on the job?
The same goes for every Indian person I know
is this an American thing?
Must be all the high-fructose corn syrup guzzling they do
You are propably incompetent homosexual murrican nurse, the same kind of Black folk who crush p.o medicines, mix it with water and use as an IV meds and wonder why patient died 😀
All of your post is fricking nonsense
> Paramedics break down your door and complain that the place smells like shit while they scrape you off the floor.
I’m dying, Lmao.
>T. A lying homosexual
Ignore this anon, my grandmother had a bag for years, never smelled once even until the day she died.
You are both the same person and OP made that reply so he could get genuine answers to his question
how do you know that?
Speaking from experience anon?
Literally not remotely true lmao. My mum has a permanent colostomy bag and you would literally never know. She even does mad shit in the gym like rings.
nice try, my woman stuck with me through surgery getting the bag and getting it taken down.
never had anyone mention a smell. as long as they can hook you back up to your butthole later having an ostomy is fine
Kek i have never seen someone so BTFO in this shithole
i swear ive seen this post on here before a couple years back when another colostomy anon posted as well
there is some kind of giga autist that has a seething hatred for anyone with this medical procedure on IST
I'm sure dogs will love him tho.
I agree tho, suicide is painless.
.t Male psychiatric nurse
Ignore this OP. It is a lie.
I know for a fact they are a liar because a old man I met hid for years he was born with a disability that required one. When he was a kid, it was discovered in his Kung Fu class when his shirt accidentally went up. The teacher was strictly against teaching any special kids due to safety issues. The only reason he wasn't kicked out was because of a teacher assistant. The teacher said they would have to go because no one would want spar with them out of fear they'd hit it and burst the bag. The teacher's aid then said they would spar with them, so they were allowed to stay.
Ignore the male nurse homosexual. If your hygiene is halfway normal nobody will notice. I have no tips for you on diet, good luck my friend.
If gay dudes can get away with not smelling that bad after anal sex has made them incontinent, you can get away with a colostomy bag
people just want to be polite when it comes to gay dudes pooping themselves
What kind of guys you are fricking? The anal fisters?
Homosexual incontinence is common
why are they removing your large intestine?
Probably IBD
ulcerative colitis covering the entire colon. i hopefully will not need it removed, but the drugs they give are basically immunosuppresants so if a infection kills my colon, then it's gone
You need South Bronx Paradise Therapy!
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1774348/
>Getting parasites willingly
I'm all in for alternative therapies, specially when doctors are being so moronic, but parasites are something else
https://www.amazon.com/Parasite-Rex-Bizarre-Dangerous-Creatures/dp/074320011X
They are something else, but probably not what you are thinking. It is not a witch-doctor tier "cure"; rather, it is the recognition that these diseases don't exist in the developing world. It is extending exposure theory to the parasite world.
HAHA YEAH! NOW WE ARE TALKIN!!!
Carl had some good ideas.
Maybe, Carl did nothing wrong.
Will it kill you otherwise? I don’t think colostomy bag is rope worthy, but make sure they don’t do the doctor shit where they take the safer easier choice that affects your qol so they don’t have to worry about you dying on their hands and you go away. Family member has one, I wouldn’t have noticed unless I was told.
ive nearly died 2 times because of the blood loss from the inflammation, so i dont see any other option but to risk going on the drugs. i tried my best to avoid it by going on a diet that eliminates as much trigger foods as possible, but it hasn't healed after a year so i dont know what else to do
The drugs are a nothing burger. I take Humira and already posted here
. I'm also on prednisone rn and don't wear a mask or anything and Im fine. The only bad part is a bit of a sting when you take the shot.
how long does it take for the drugs to give relief, and does it take you 100% back to where you were before the disease? doctors want to give me entyvio, but another anon said it took 6 months to work for him
The drugs can take up to 3 months to work. You also may need to try different medications, it's basically a coinflip whether a particular one works for you or not. They can't reverse scarring, notnint can. They can prevent further scarring which is why the modern protocol for IBD is to use biologics as soon as possible as a preventive measure for further damage. the longer you wait to get on them the more likely you'll need surgery
im going to regret being a schizo with these drugs, i guess. it was pretty mild when i first got diagnosed, but that was 3 years ago
There's nothing you can do. My reccomendation is just get on a biologic, I was nervous about it before but if anything my QOL is improving now.
I will say I basically feel normal rn with the combination of Humira and prednisone but the pred is doing a lot of the heavy lifting and I have nasty back acney but other than that my lifts are going up and I don't have as many trigger foods.
>but the pred is doing a lot of the heavy lifting
how long have you been in treatment? you arent supposed to take prednisone as a long term thing
I've been on pred for 6 weeks. I have 3 more left. And yeah pred is poison I want to get off it ASAP but it's normalized my condition.
oh ok. yeah ive been on 3 different courses of prednisone, that stuff can make a lot of the symptoms go away on it's own. the problem is that one wrong move sends you back to square one
I have Crohn's disease. The drugs they give you normalize your immune system, you can be a bit more prone to infection but they aren't like taking chemo or something. Only get your colon removed as a last resort because of scarring, the drugs are more likely to help you than hurt you.
Carnivore also cures Crohn's.
Start nicotine unironically
I got diagnosed with UC at 16, it was awful and the meds never helped. Nicotine changed my life and so long as my diet is good, I can live like a normal person
Interdasting. One reason this works may be because diseases usually have a psychological component and nicotine relieves stress, which improves your physical health. Kinda like how I cured my plantar fasciitis and back pain by not worrying about it.
Please explain I have flat feet and all my feet hurt. Tendon achilees, sole, sometimes calves. Can't stand more than 1hr or run or walk over 500m without feeling tiny pain that grows to 5/10 pain after 1km. Back pain from scoliosis lordosis and kyphosis
Stress worsens inflammation.
Nicotine relaxes you, it will work if its minor issues but in your case just add massages since you have nerve problems.
Flat feet can be cured by wearing minimalist shoes like xero prio shoes.
Your brain has much more control over how your body functions than you think and can cause problems by restricting bloodflow or directly causing inflammation and whatnot, and can be stopped from doing that through psychological means. I learned it and cure by problems by reading 'The Mindbody Prescription' by John Sarno, who gives a much better explanation than I can
someone else can probably correct me but there are nicotine receptors in your digestive system and nicotine actually reduces inflammation in those areas. my sister has Crohn's + the bag and she smokes a frickton
Uh dude...
>While smoking appears to exert deleterious effects in Crohn's disease [1, 2], there is overwhelming epidemiological evidence that smoking protects against ulcerative colitis, the risk of developing the disease being significantly lower in smokers than in non-smokers or former smokers [2, 3].
I have that. I take Mezavant and imuran.
Had it for 7 years and stable. Getting the bag is a future concern but for now enjoy every day of health. I have no side effects and am in my 30s.
Stay positive anon and be a chad. You will still find a woman there are enough moderately attractive clingy women who will love a man who gives an alpha vibe even if he has a bag.
If your surgeon hasn't brought it up already, you should ask about the possibility of a J-pouch. It's a surgery where they have a bag connect the end of your small intestine to the rectum. You will still have to have an ostomy for around six months to a year tho.
Carnivore diet cures ulcerative colitis.
>surgeon advocates surgery, that's his job after all
>surgery as a serious consideration before radical lifestyle/diet changes
how many years have you had Crohn's, what other medical conditions do you have, what's your current prognosis, do you active cancer, when was your last colonoscopy, what diet and/or lifestyle changes have you done and adhered to since being diagnosed?
Okay OP, ulcerative colitis is caused by inflammation. You need to lower your inflammation. There are foods that can do that, but understand that your doctor and the medical complex as a whole don't get any money by fixing your problems naturally. If they can fix you without drugs or surgical procedures, they don't benefit monetarily from you. You can take this into your own hands, and I recommend that you do. Your doctor may truly want to help you, but his training at school only taught him one way of dealing with problems: drugs and surgery. He might really from the bottom of his heart believe that drugs and surgery are the best thing he can do to help you, but that's just his training from med school. Anon, you DO NOT want your colon removed. You need to change your diet to one that will give your colon rest and time to heal naturally.
Step one is eliminating ALL processed foods. If it has a barcode that can be scanned, or comes in a box, bag, or can, don't eat it. The really bad stuff is sugar, seed oils (canola, basedbean oil, corn oil, sunflower oil, cotton seed oil, stuff like that), and for you most especially, highly refined flour. Modern refined flour is poison. It's a GMO grain that gets pulverized into dust and your digestive system has no idea what do with it, so it causes inflammation as your body tries to rid itself of it. Those three primary ingredients make up the majority of processed food, and they are all poison.
Here's a couple videos to get you started on naturally fixing this, so that a well intentioned, but misguided man convinces you to surrender a piece of your body and wildly alter your life. I pray to God you see this OP. My dad has had a colostomy for 12 years and I wish every day that we had this knowledge.
Don't listen to this moron. If you listen to him and don't take drugs you WILL need surgery and end up with a colostomy bag. Get on a biologic asap. Once the scarring is there you can't reverse it and the only solution is surgery.
Didn't say DON'T take drugs. Take the drugs, they may help, but allopathy does not cure, it only treats symptoms. A diet overhaul is what's needed. With a diet change, drugs can be easily weened off.
Based unironic dr berg poster
OP here, my internet went out last night so i went to bed
>You need to lower your inflammation
i'm trying my best with going the diet route. my diet is basically organic vegetables and some liver to supplement my iron anemia. it's really tough since i cave in to my desires to eat something i shouldnt. i live in a household of 5 people, and so of course there is going to be trash in the house to tempt me. i havent gone on any biologics yet, but i have to choose between dying from colon bleeding, or possibly dealing with a poopoo bag. life is already miserable, i dont think it can get worse
>You can't hold a fart anymore, so anytime you pass gas, it will be very audible and there's no way to anticipate it or hold it back at the stoma
what do you mean? i would be hearing loud bubbling every time some gas enters the bag?
>It will not smell like shit cause the classical shit smell is a consequence of stercobilinogen which is produced in the large intestine by gut bacteria breaking down bilirubin metabolities
interesting, i guess thats the answer to my question about the microbiome changes
>Carnivore diet cures ulcerative colitis.
people say the same thing for all kinds of diets. i think it is completely dependent on each person though. in my case, i end up having worse inflammation when i ate meat. luckily i can seemingly eat beef liver fine, so i am not completely vegetarian
>Start nicotine unironically
i see why it would be helpful for this disease, but i would rather not become a slave to addiction
i dont know, those consequences sound like my current reality. it still sounds like a bag would be easier to deal with. maybe someone will come up with a better solution in the future
How old are you, OP? Are you obese or anything? How long has this been going on? I'm watching this thread like a hawk because I know firsthand what it's like to live with someone who has one. You can fix this, OP. You can live a normal life.
>How old are you, OP
19
>Are you obese or anything?
no im 113 pounds at 5 foot 10 inches
>How long has this been going on?
started around the beginning of 2019
>You can fix this, OP. You can live a normal life.
i do believe i can fix it, i know the doctors are just covering themselves when they say that diet is not everything. ive completely changed my life to make this healing as likely as possible (lifestyle and gave my life to Christ), but it takes weeks to get any noticeable progress, and a plate of pasta is all it took to take me back to where i started. that's probably the reason why doctors dont recommend diets, its because almost no one is strong enough to go through with it. look at how many type 2 diabetics are slaves to insulin when they can just stop eating for a while and reverse everything
You're 19? Dude, you can fix this no problem. I was seriously picturing you as a 35 year old obese dude. Okay, age and weight change parameters. You said pasta really bothers you, is that all breads and wheat stuff too? Gluten sensitivity is a craze right now, but if it's that's bad, you might legitimately have celiac disease or something. Also, 5'10" 113 is pretty light, but I don't know your build. Can you describe your eating patterns growing up? What are your favorite snacks and how often do you eat them? Do you or your mom regularly cook dinner at home? What do those meals look like?
i wouldnt say i specifically have a gluten problem because it's easier for me to just say that i can only eat vegetables than to say which foods bother me. my diet growing up was complete garbage as you can probably guess. my current diet is vegetable soup, raw milk, kefir, and some beef liver for iron. the vegetables that i eat are potatos, peas, carrots, cabbage, and bell peppers. all organic. i also have some 100% cacao whenever i want something different. im sure that my diet is fine, but it takes soooooooo long to reverse a single day of eating something that i was tempted by
thank you
i was 17 and dropped to 95lb @6' and had tried every type of dietary bullshit when I had to have my colon removed. This was me on the front left @ around 140lb before my surgery
me on left in front @130ish lb before surgery
Did you atleast bang the qt?
Said a prayer for you brother
dude the sooner you take the meds the less likely you'd have to undergo surgery
I second this. A cure exists in the form of diet or the parasites that other anon was pumping earlier but it may take too long to find. Become a slave to the medications, for now at least, and continue to find what works best diet wise.
Start making your own kefir. It’s easy and has been known to cure IBD
(J-pouch haver/ ex colostomy dude speaking, SeppukuDrewStew#9968 on discord if anyone wants to talk about this)
this guy is on a track but it's not quite the right one.
what you want to avoid is these oils yes, but also gluten. for a while after my surgeries, i couldn't handle it. Eggs either. Milk either. Now i'm back to normal with that stuff but high fiberous stuff and highly gut reactive things like beets and brocoli and eggs and vegetable oil and extreme spices, etc.... it CAN frick you up but you'll have to feel everything out to know yourself.
>Don’t trust your doctor, he only knows drugs and surgery(unnatural and bad) and hospital needs ur money op
>Instead just start eating home grown veggies and locally butchered meat(natural and good)
Facebook mom group level of moronation
Instead of removing your colon you could switch to a healthy meat only diet and cure yourself. You probably want to keep eating leaves though because the same government that is wrong about everything told you that eating leaves is healthy.
Please, take your meds.
Try a daily coconut oil enema. The person in this study didn't have exactly what you have, but it sounds similar. What have you got lose? And if you do decide to do this, do NOT microwave the coconut oil to warm it up, it just screws up the oil somehow & makes the whole thing not work. (source: I did the coconut oil enema for dysbiosis & it worked liked magic, but only when I didn't microwave the oil itself)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6768601/
Doctors are fricking idiots.
Do this
Why can't they just put the poop bag inside the body?
How do you get the poop bag out?
Just have a small hole instead of having the entire shitbag outside, then its just a secondary butthole.
So you’d use like a vacuum to clean it out. Hmm. You’d still need to replace it every so often but I feel like it would only need to be like once a decade based on fake tit replacements. I worry about points of failure though. If the bag fails normally you just shit on yourself, if it fails here you die of sepsis.
Then you get punched once in the stomach and die of sepsis.
Maybe attach a relief valve that comes out between your asscheeks?
>ohhh boo hoooo my intestines or whatever
quit being a fricking baby OP, I'm BALDING
Generally speaking people with a colostomy bag do not have to have changes to their diets and if so they are minimal. It may depend on how much of your colon is removed and where it is removed. Most nutrient absorption occurs in your small intestine but your large intestine reabsorps fluids and salts. I cannot comment on the microbiome changes..
You may find that the psychological shock of the surgery will be most difficult to come to terms with at first. This happens to most patients though few just get along with it, it depends on your temperament. I would encourage you to be confident with your stoma care if you do have to have surgery, many colostomy and ileostomies are not permanent! I will say my experience working with Stoma nurses has been very good and they are very supportive to their clients. Even if you have your full colon removed, such as in the case of a toxic megacolon, there are still circumstances where the stoma can be replaced with a pouch-anastomosis.
With regards to how this may affect your work out routines I would recommend discussing this with your physician or GP depending on your country.
>pouch-anastomosis
whats that? an artificial colon, but without the absorption?
Pouch-analy anastomosis sorry. Essentially your small intestine is surgically attached to your anus. Also known as J-pouch. I haven't had clients who have had gone through with this procedure so I cannot comment on how it impacts health outcomes and quality of life. My assumption would be that it is not as good as having a large intestine but is better than having a stoma.
https://my.clevelandclinic.org/health/treatments/21062-j-pouch-surgery
i assume stomas let you have more freedom with when you have to use the bathroom? that surgery seems worse if you end up having similar QOL issues that i am already having (increased bowel movement frequency)
Not really, once your bag is full you need to empty it, and it will often fill with gas so you will likely end up using the toilet/ emptying the bag more frequently especially if you're prone to gas.
Pouch patients continence varies, but typrically you'll go the same amount as during a flare up (4-8 times a day really) and how long you can hold this will depend on the strength of your pelvic floor, some patients will be able to hold things for 5 minutes, others 30 mins, it varies but it can be trained post surgery which is why its important to retain some of the rectum and to train the pelvic floor again after surgery.
These are all things you should be discussing with a doctor or surgeon, though.
First time posting, but have experience with this. Building on what has been said here, some excellent advice. You will still be able to eat notmally in most cases, but a lot of ileostomy patients opt for a low FODMAP diet, something which if you haven't already tried might be beneficial even without a colostomy/ ileostomy.
As this poster has said the surgery and getting over it will be difficult psychologically, so having some support there wil help, you will feel very weak and different after the surgeries, will be a very big change to life which you will need time to adapt to.
Finally, I would really like to highlight about the pouch-anastomosis, some places they call it a j-pouch or reversal where they essentially construct a quasi-colon from your small intestine which eliminates the need for a bag. This is a really good option which can give most patients a great quality of life. I would discuss the possibility of this with your doctor/ surgeon and whether it would be a possibility. Sometimes patients will need to have an ileostomy first but can be turned into a pouch within a couple of years.
God bless, OP, I hope you make it through these hard times, brother.
The real question is, what happens to your butthole
Do they sew it shut?
Why even do the colonostomy and not just remove the problematic part of the colon and stich the rest back to the butthole?
Why open an entirely new hole with a bag on it while you already have a perfecly good hole with self-shutting mechanism?
Smells like shitty medical practice to me
I read smoking cigs help reduce inflamtion with UC but you have to smoke 4-5 time a day. I'm under mesalamine and it's working atm. Good luck Op and I hope you pull through this.
Only guys I've know with those wanted to fricking die.
But they were also over 60 with other problems.
The guy who got ass cancer removed and can't hold his shit anymore wishes the doctor told him he'd have no control over it and would have rather taken his time left with the cancer and not constantly shitting in an adult diaper.
Working with old people is a mix of dirty jokes and talking about the time they got cancer or when their friends/family died from it.
> eliminate gluten from your diet (wheat products)
> no coffee
> intermittent fasting (2x weekly)
> drink plenty of water
> keep your colon
> avoid gassy vegetables
if no one protests for Black person no one should protest for someone who occasionally smell for a medical condition
every Black person smell 24/7 no matter what
Not contribooting to the discussion but can i just say I nursed a lady who used to let people frick her stoma. If you're in the market for body horror festishist, you're in luck.jyhj4
Don't listen to the "rn". My dad has had one for about ten years. The changes aren't too bad. Get this thing called a "Stealth Belt" and people rarely know you have one. Definitely change your diet to things that do not produce gas; much less fiber. You can't hold a fart anymore, so anytime you pass gas, it will be very audible and there's no way to anticipate it or hold it back at the stoma. One benefit is that pooping in the woods or in portapotties is a lot easier, you just need to have a water bottle with you to flush out the bag. A really bad thing though is if you get really sweaty or it's super hot out is that the mounting ring around the stoma is held on with an adhesive. If you sweat a lot, and you havent emptied the bag for a while, it can peel off and just drop at your feet. It's happened to my dad I think 3 times in the 12 years he's had it. It's extremely embarrassing and hard to clean up. Another bad thing is that depending on how much of your colon is removed, the liquid content of your stool will be much higher. This will also mean that your stool will absolutely reek when you empty the bag. Highly highly suggest carrying bacteria neutralizing drops called "M2".
OP, life with a colostomy is manageable, but you don't want one. Why does your doctor believe you need a section of your colon removed? There must be other avenues. Also AMA about colostomies long term.
>thread full of SHIT
I actually had my colon removed and now got hooked back up to my anus AMA
do you have a j-pouch or did someone try to do a straight connection with you like they almost tried with me?
yeah I dropped to 95lb before my colostomy surgery and i'm 6'. spent a month in the hospital trying "miracle drugs" to save my colon. wouldn't recommend.
Smoking weed, eating weed, or smoking anything is actually the worst i can do for myself beside not sleeping. rest and stress management is 100% of what keeps me alive now aside from planning ahead for issues.
>do you have a j-pouch or did someone try to do a straight connection with you like they almost tried with me?
he probably means that they left the colon detached in the body because theres a chance for it to heal up after a while of not being used
no they hooked me straight up using my remaining sigmoid colon. Right to my rectum, no j-pouch.
Is J-pouch preferred?
My friends brother had his intestine removed.
He had to permanently change his diet (Coeliac disease) but not as a result of the op.
Amazingly, he can still do contact sports, including rugby, which basically involves being constantly gut checked.
He's got this powerlifter belt thing and medical grade bag thing specifically for sports that keeps it all together
Basically doesn't seem to have changed his life in any way I've noticed
I've never once met a person having this kind of shit, what the frick is wrong with americans.
This is absolutely revolting.
If you have crohn's, CUT the PUFA/seed oils and fast food ASAP.
Low carb and home-cooked food is best, if you do have to get it, people with C-bags that eat mostly meat (think carnivore or keto-carnivore) have the smallest amount of discharge.
Lust-provoking image to make sure OP sees this
Reading this thread give me some hope since I have to deal with polyps and don't know if I might need a bag. So hoping j-pouch is a viable option for me since my dad had to get his colon remove and dunno if was only losing the colon that cause him to have trouble eating food that give him a hard time or that plus blue collar worker. Either way hope you make it bro O7
More details on the polyps please. I had a colonoscopy and they removed a 3mm non cancerous polyp. I’m assuming yours were a lot worse?
My last check up was over 5 years ago and that i should watch what I eat. I didn't and last year there was blood. Did a complete reset and fast made sure I eat high fiber food went back to normal but now I have to watch what I eat so I have at least somewhat of a solid bowel movement. So I will know whether or not how fricked I am after my gi doctor do the procedure after august. Would have done it sooner but was going through an unemployment arc until the end of last year and honestly it's mostly fear that delayed me from finding new doctor and getting the refferals after I moved.
This is the fate of all homosexuals
i joked around about this shit with a kid in highschool too, and then it happened to me. Guess what, homosexual.... you're next.
what the frick causes...whatever it is requires a colostomy?
American physician here. No i made no extra money due to covid.
Anyway, the biggest thing I notice with colostomy patients (ambulatory ones, people who are actually living their lives), is that sometimes you can hear their bowel sounds a bit more pronounced than others.
You know how sometimes your stomach will rumble and someone will tell you "oh you just be hungry, anon!"? Well with colostomies you can hear those kind of sounds quite frequently. I'm guessing your diet will also play a large part in this. Stay away from the stereotypical American glue diet (as i call it-low fiber), and you should be good.
With proper ostomy care your skin integrity should be fine, there should be minimal smell too
My dad had the bag and got it reversed. Couple gross situations but that's only because my mom told me about them. I never experienced it. Felt so bad for the man but he seemed to handle it just fine. Worst thing about it, he said, was that it would fill with gas a lot when he slept.
Good luck man.
This is the most interesting and informative thread I've seen on IST in a long time and I don't even have GI issues.
what is it like being born a israelite
Read about irrigation, look up dude called Ben Moon
"Also look into irrigation if you have a colostomy, essentially it’s a daily colonic that allows you to gain control of your digestion. It’s truly a game changer I’m able to wear a very small stoma cap instead of a large bag. Please message me with any questions, I know how challenging it can be to find real world answers on this topic, especially if you’re active."
My friend's fiance has a colostomy and she gets on alright. My friend had told me that, to her, the worst part has been how socially isolating it is. She's apparently humiliated by it.
this is legit the definition of hell for me personally
I had a sigma resection a couple years ago (pic very related) I thought to wake up with the bag but to my surprise it wasn't there, surgeon decided to try keep my butt functional for it's primary job and it worked so far. It might be your case anon! I wish you all the best. Also I eat whatever I want now.
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Ulcerative colitis since my late 20s, now in 40s still with guts intact
Frick you this will never happen
Also lol IST is gay as frick now 12 years later
what, are you on biologics or did you just heal yourself?
Combination of a lot of things, immunosuppressants, other drugs like sertraline to reduce symptoms
Codeine and CBD also help with the worst of the uncomfortable symptoms
I didn't completely heal but at least my intestines haven't been replaced with a shitbag
I swear I brought this on myself by taking anti acne medication back in uni but there's alot of itis in my family so who knows
Btw colitis support groups are filled with hot girls, downside is they may have a poop bag
Ulcerative Colitis here look at my shit. Please send prayers my lifts have been massacred
Thats just a popped hemorrhoid, or you just got butfricked a little too hard
Problem blood in stool is dark
Lower gi hemorrhage is red... Transverse colon onwards bloody bright red
Crohn's gay here. Absolute nightmare disease.
Kept it under control with steroids for years but not have osteopenia, prediabetes and all sorts of fricked up joints and spine. Small intestine is shredded and unlike the large you can't just rip it out and be done with it.
If i had UC i would 100% have gone for a colostomy soon as possible. Who cares about a bag when it just removes your disease from you.
what do they even do if your small intestine is destroyed? do you have to be injected with nutrients?
they would put him on TPN - Total Parenteral Nutrition. this is a tube that goes into your heart and through your chest and out your arm. Very uncomfortable, infusions would be every night, and he would have to watch his insulin levels every hour.
>if only you knew how bad things were
I remember being a medical student on a gastro ward and some tone deaf gastroenterologist was asking someone on TPN to tell the group how great their life was now they had a new TPN formulation that meant they could walk free something like 4 hours of the day rather than 2.
My plan? Commit suicide if it comes to it. I've held onto all the gut so far but they've come close a few times to wanting to cut some out.
First you might have to change your diet, then go full elemental, basically nutrient soup diet. Then if you really have little left you go TPN where they feed you through a large vein but that requires being in hospital most of the day and kills your liver so at that point you're effectively terminal.
Unironically crohns is a wildly underappreciated disease for how horrible it is. It's probably the single worst disease it's possible to have which won't just kill you within a year or two. I've met plenty of people with it who i just don't know why they haven't killed themselves yet. I could go into all my symptoms but there's not a part of my body that hasn't been permanently damaged from it.
*i'd qualify that some other conditions like scleroderma are probably as bad.
Plenty of worse ones that will kill you though like MND, MS, pulmonary hypertension etc.
>I've met plenty of people with it who i just don't know why they haven't killed themselves yet
its probably because crohns can affect any part of the digestive system, so other people can be lucky enough to not have it in their small intestine
It can technically affect anywhere. I have had eye manifestation, joint, nails, nerve, brain, bladder, hearing. I was being tested under neurology for ages prior to my diagnosis as I basically lost all power to my legs and had wild twitches and fasciculations. For some reason every night i'd start having weird vocal twitches too.
that's terrible. i always feel envious of people complaining on here about their life problems, and then i have to remember that there are people out there like you
Not much to say other than it is what it is. I was never an "ill" person, then at 23 my life just took a whole new direction and that's kind of been the story since. Takes a while to get over the main character delusion and accept your one go at existence is going to be an impaired ill one.
I don't mean i don't get why not everyone with IBD has necced - i haven't. But in my hospital stays i've met some people with it with utterly wretched lives. People who have been more or less hospital residents since they were kids, constant pain, operations, living in wards with shit smells and moaning pained patients. Talking fondly about that time 5 years ago they managed 4 months out in temporary government assisted housing before being readmitted.
More power to them but i couldn't. The lives some people live away from what we all know as normal lives.
checked. also stop the doomer shit rignt now. the light at the end of the tunnel for people in your situation are the other healh improvements that come along with having a non-imflammed GI situation. it affects your mental health and immune system greatly-
im saying this as someone who has gone through it. I was on TPN for 3 weeks
TPN as temporary gut rest is very different to requiring it because you've got no small bowel left.
aye but ive lived it mate. i could easily do TPN if it meant not having UC side effects daily.
Sure - but the issue is that TPN will eventually kill your liver. So the thing is if you lose all your small bowel you're on a time limit.
Anyway who knows where things will be medically in a couple of decades. Though it's been a decade since i got it and not a lot has come out lmao.
Have you ever tried homemade kefir? I know it seems very simplistic, but I’ve seen all these stories where people claim it cured their IBD. I’m trying it out right now for my chronic IBS but trying not to get my hopes up.
Not homemade but i've done kefir, i take some "study proven gastro-resistant" expensive probiotic daily.
To be honest though i find what I actually eat doesn't make any difference. I've done all kinds of diets: gluten free, dairy free, carnivore, vegetarian, keto, low carb, paleo etc etc. Whatever causes crohn's i don't think it's just bad bacteria. Now i just eat normally minus too many energy drinks which I kind of rely on to get through fatigue, need to stop that.
not him but i do have homemade kefir from raw milk. not sure how much im supposed to drink, but i feel like i should be seeing changes by now. sadly not.
Honestly they need to find out why incidence of this stuff is rising so quickly. Anyone i talk to now knows a few people with either crohns or uc but i talk to people who had it in the 70s and they said it was a rare disease back then.
My brother got shot and had a part of his large intestine removed. He had a bag for 6 months then got the intestine reconnected to his anus. 6 years later, he is living his best life.
Praying for OP. Every (You) is a prayer sent for OP.
40 day fasting.
You all need to destroy and consume your bad cells.
Carnivore is good too but not too much meat each day or you will overextended your organs.
Buddy, just fast. Start with 12-12, then 16-8, then 20-4 (2 meals a day), and live the rest of your life on OMAD (one meal a day). Once a month do a 3 day fast. Four times a year do a 5 day fast. You'll be good as new within 1-3 years.
>literal amerishart the thread
4th world problems for a lifetime of consuming exclusively 4th world tier quality food products. Bottoms up!
nice try europoor, dont think you're off the hook
Women most often end up with colostomy bags because of chronic digestive issues from an abhorrent diet, and instead of doctors being heavy handed with this suggestion, and knowing their patients are obstinate morons opt for invasive mitigating procedures. It's disgusting all around.
I got my terminal ileon and Ileocecal valve removed. Didn't get a colostomy thankfully.
The problem is if I don't take care of my diet I shit like a bastard. I had to stop coffe and other stuff. I also need to take colesteramine everyday (it absorbes the bilis the terminal ileon is supposed to absorbe). Consider yourself lucky if you keeping the terminal ileon.
lol homosexual walking around with shit sack on his tummy. You're done man